Evidence map›Paper›PMID 39648434›Full record

ArticlePalliative medicine2025

Co-production in practice: A qualitative study of the development of advance care planning workshops for South Asian elders.

Oliver Clabburn, Tracey Stone, Naheed Anwar, Taskin Saleem, Salim Khan, Verena Hewat, Usha Grieve, Lesel Dawson, Michelle Farr, Sabi Redwood and 1 more

Abstract read
In one paragraph

Article in Palliative medicine, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 2 papers, 1 of them a synthesis that pooled it.

0numbers the graph read from it
0cells of the map it votes in
2citing papers in PubMed, 1 pooled it
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

2 citing papers in PubMed, 1 synthesis or guideline pooled it.

  1. Pooled it
  2. Coproducing COVID-19 Health Information Resources: A Participatory Study With Older Adults From Minoritised Ethnic Communities in the UK.Health expectations : an international journal of public participation in health care and health policy · 2025
    Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

11 authors.

Oliver ClabburnPalliative and End of Life Research Group, Bristol Medical School, University of Bristol, Bristol, UK.ORCID 0000-0003-1504-5968
Tracey StonePalliative and End of Life Research Group, Bristol Medical School, University of Bristol, Bristol, UK.
Naheed AnwarThe Subco Trust, Newham, London, UK.
Taskin SaleemThe Subco Trust, Newham, London, UK.
Salim KhanThe Subco Trust, Newham, London, UK.
Verena HewatCompassion in Dying, London, UK.
Usha GrieveCompassion in Dying, London, UK.
Lesel DawsonDepartment of English, School of Humanities, University of Bristol, Bristol, UK.
Michelle FarrNational Institute for Health and Care Research Applied Research Collaboration West (NIHR ARC West), University Hospitals Bristol and Weston NHS Foundation Trust, Bristol, UK.
Sabi RedwoodNational Institute for Health and Care Research Applied Research Collaboration West (NIHR ARC West), University Hospitals Bristol and Weston NHS Foundation Trust, Bristol, UK.
Lucy E SelmanPalliative and End of Life Research Group, Bristol Medical School, University of Bristol, Bristol, UK.ORCID 0000-0001-5747-2699

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

backgroundAdvance care planning can improve patient and family outcomes; however, minoritised ethnic communities experience access barriers. Co-production offers a way to design culturally appropriate information and support, but evidence is needed to understand its implementation in palliative care.

aimTo explore and describe how two charities used co-production to develop and deliver community-based advance care planning workshops for South Asian elders.

designWorkshops were co-produced by two charities. In parallel, a multi-component qualitative study was conducted comprising workshop observations, semi-structured interviews with charity staff and focus groups with workshop participants, facilitated by community co-researchers in English, Hindi, Urdu and Punjabi. Data were analysed using thematic analysis. SETTING/

participantsFour workshops were held in a London (UK) community setting (each with 5-30 participants); four interviews were conducted with charity staff members, and three focus groups with 16 workshop participants.

resultsWe describe three main themes: Co-production in action: organic origins and trusted foundations; Co-production processes embedded in equal partnership; and Impact of the workshops. Fundamental to co-production processes was the community-led approach of the local charity, the trust of the local South Asian community and the relationship between the charities, including transparent communication and mutual respect. The workshops were reported to be useful and enjoyable, engendering a sense of agency and connection and helped disseminate awareness and knowledge through the community, benefitting the wider system.

conclusionsCo-production can help widen access to advance care planning. Findings offer an in-depth example of co-production-in-action to inform intervention development and research.

Indexed as

Advance Care PlanningFocus GroupsQualitative ResearchAgedAged, 80 and overEducationFemaleHumansLondonMaleMiddle Agedadvance care planningcultural characteristicsend-of-life careethnic and racial minoritiesfocus groupsminority groupsqualitative researchSouth Asian people

Identifiers

PMID39648434
PMCPMC11673291

What OpenQuestion holds

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LicenceCC BY-NC
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Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.