Evidence map›Paper›PMID 39645253›Full record

ArticleBMJ open2024

Trauma-informed family carer education and practical skills training in dementia: a systematic scoping review protocol.

Eileen Harkess-Murphy, Debbie Tolson, Joshua Cheyne, Suzanne Heron, Anthony Butler, Yvonne Murray, Bryan Mitchell, Kath Limond

Abstract read
In one paragraph

Article in BMJ open, 2024. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.

0numbers the graph read from it
0cells of the map it votes in
0citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

0 citing papers in PubMed.

No citing paper in PubMed yet.

4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

8 authors.

Eileen Harkess-MurphyHealth and Life Sciences, University of the West of Scotland, Paisley, UK eileen.harkess-murphy@uws.ac.uk.ORCID http://orcid.org/0000-0003-0410-4627
Debbie TolsonUniversity of the West of Scotland, Paisley, Renfrewshire, UK.
Joshua CheyneUniversity of the West of Scotland, Paisley, Renfrewshire, UK.
Suzanne HeronUniversity of the West of Scotland, Paisley, Renfrewshire, UK.
Anthony ButlerUniversity of the West of Scotland, Paisley, Renfrewshire, UK.
Yvonne MurrayUniversity of the West of Scotland, Paisley, Renfrewshire, UK.
Bryan MitchellUniversity of the West of Scotland, Paisley, Renfrewshire, UK.
Kath LimondUniversity of the West of Scotland, Paisley, Renfrewshire, UK.

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

introductionThe incurable and progressive nature of dementia requires complex care, the majority of which is provided via informal caring by family members within the family home. Carers experience significant stress absorbing the challenging care needs of their family member and require education and training that can support and sustain family caring arrangements while considering the psychological distress that threatens caring breakdown. The aim of this scoping review was to map the evidence of trauma-informed principles within education and practical skills training in dementia family caring. METHODS AND ANALYSIS: A two-step approach to the selection of literature will be used. In step 1, the review will consider research on active intervention education and practical skills training to support family home-based informal care for individuals with a formal diagnosis of dementia. The review will exclude passive education and self-accessed information/training provision. Only literature in the context of 'informal' day-to-day family caring provided by a family member or friend that takes place in the family home or residence will be included. Education and practical skills training provision within specialist care environments will be excluded. In step 2, during the full-text screen, only research where either explicit or implicit use of trauma-informed approaches has been used will be included.Preliminary searches of MEDLINE Ovid and Cumulative Index to Nursing and Allied Health Literature (CINAHL) were carried out between March and May 2023 to identify literature in this area. In line with the Johanna Briggs Institute scoping review guidance, we will conduct a search of published literature within MEDLINE Ovid, Embase Ovid, CINAHL EBSCO, Cochrane Data for Systematic Reviews and Cochrane Central Register for Controlled Trials in the Cochrane Library, PsycINFO Ovid and the British Library EThOS e-theses online. Publications in English with a date range of 1990 to current, with no restriction on geographical region will be considered. The search will be managed by Rayyan software and screened by multiple independent researchers. Results will be presented using narrative summaries and tables.We collaborated with an experienced Academic Support Librarian to develop the MEDLINE Ovid search strategy (Appendix 1), which will be adapted for searching other databases. ETHICS AND DISSEMINATION: Ethical approval was not required for this review, as it involved the synthesis of publicly available secondary data. The findings will be disseminated through publication in peer-reviewed journals, as well as presentations at national and international conferences. Additionally, stakeholder events will engage carers, individuals with lived experience, and healthcare professionals.

Indexed as

CaregiversDementiaFamilyHumansResearch DesignScoping Reviews as TopicDementiaEDUCATION & TRAINING (see Medical Education & Training)FamilyStress, Psychological

Identifiers

PMID39645253
PMCPMC11628969

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.