Evidence map›Paper›PMID 39639869›Full record

ArticlePEC innovation2024

How often are patients recording their healthcare consultations in Australia and why? An online survey.

Megan Prictor, Glyn Elwyn, Amelia Hyatt

Abstract read
In one paragraph

Article in PEC innovation, 2024. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 1 paper.

0numbers the graph read from it
0cells of the map it votes in
1citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

1 citing paper in PubMed.

  1. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

3 authors.

Megan PrictorMelbourne Law School, The University of Melbourne, Carlton, Australia.
Glyn ElwynThe Dartmouth Institute for Health Policy & Clinical Practice, NH, USA.
Amelia HyattDepartment of Health Services Research, Peter MacCallum Cancer Centre, Melbourne, Australia.

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

Purpose: Recording important healthcare consultations can benefit patients. Technological developments enable recordings by patients and health professionals, as well as real-time 'listening' by AI scribes. Not enough is known about whether and why patients record their consultations. Objective: To investigate people's experiences and preferences regarding consultation recording in Australia. Methods: A 21-item online survey available for all Australians aged 18+ was distributed via social media and professional networks in 2022. Items explored recording behaviour (past and planned), and reasons for recording and sharing. Quantitative data were analysed descriptively; qualitative content analysis was used to analyse open-text items. Results: A total of 486 responses were received, of which 236 responses were analysed. Of these, 26 % had openly recorded a healthcare consultation, and 15 % had recorded covertly. The majority (71 %) of participants would consider recording a visit and would like their clinic to allow this (56 %). Participants strongly opposed the idea of sharing a recording on social media (84 %). Open-text responses indicated participants valued the health professional's consent, and protecting their own privacy by not oversharing recordings. Conclusion: Recording of consultations in Australia is common, usually to enhance patients' knowledge, understanding, and participation in their care. Patients value the possibility of recording, especially when they are experiencing vulnerability. Recording can help people navigate the impacts of disability and barriers to information access. Privacy and fairness remain paramount. Innovation: This is the first survey of recording practices in Australia and is highly-relevant given recent technological developments. The findings indicate that changes in policy, law and technologies themselves are needed, to clarify parties' rights and responsibilities and to ensure the benefits of consultation recording are realised.

Indexed as

AI scribesAudio recordingDoctor-patient communicationHealthcare consultationSmart phoneSurvey

Identifiers

PMID39639869
PMCPMC11617237

What OpenQuestion holds

Textmetadata
LicenceCC BY-NC-ND
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.