Evidence map›Paper›PMID 39638309›Full record

ArticleCancer control : journal of the Moffitt Cancer Center

Decentralized Clinical Trials at Home: Commentary on Caregivers' Burden.

Opeyemi Bolajoko, Dottington Fullwood, Mahin Colissa, Arnold Merriweather, Callie Merriweather, Folakemi T Odedina

Abstract read
In one paragraph

Article in Cancer control : journal of the Moffitt Cancer Center. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 1 paper.

0numbers the graph read from it
0cells of the map it votes in
1citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

1 citing paper in PubMed.

  1. Review
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

6 authors.

Opeyemi BolajokoMayo Clinic Comprehensive Cancer Center, Mayo Clinic, Jacksonville, FL, USA.ORCID 0000-0002-9841-4476
Dottington FullwoodMayo Clinic Comprehensive Cancer Center, Mayo Clinic, Jacksonville, FL, USA.
Mahin ColissaMayo Clinic Comprehensive Cancer Center, Mayo Clinic, Jacksonville, FL, USA.
Arnold MerriweatherInclusive Cancer Care Research Equity (iCCaRE) for Black Men Consortium, Jacksonville, FL, USA.
Callie MerriweatherInclusive Cancer Care Research Equity (iCCaRE) for Black Men Consortium, Jacksonville, FL, USA.
Folakemi T OdedinaMayo Clinic Comprehensive Cancer Center, Mayo Clinic, Jacksonville, FL, USA.

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

Decentralized clinical trials (DCTs) provide the opportunity to bring interventional studies closer to participants in their homes or a suitable location closer to prospective participants, thus increasing participants' diversity, accrual, retention, health care, and research access. However, little is known about the burden of caring for cancer patients participating in DCTs. This article describes how DCTs might affect the caregivers of cancer patients. The points discussed include how technological challenges for those without adequate digital literacy can overburden participants and their caregivers at home, as well as managing and optimizing research logistics and safe handling of samples. In addition, the shift in labor from the study personnel to the participants and their caregivers in a bid to complete several study procedures on their own can increase the care burden, especially if not well incentivized. Therefore, it is important to accumulate evidence on ways to optimize DCTs, especially in the home environment, without increasing the burden on caregivers, who will be an integral part of the study team and support the research at home.

Indexed as

CaregiversClinical Trials as TopicNeoplasmsCaregiver BurdenHumanscancercare at homecaregiver burdencaregiversdecentralized trial

Identifiers

PMID39638309
PMCPMC11622315

What OpenQuestion holds

Textmetadata
LicenceCC BY-NC
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Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.