Evidence map›Paper›PMID 39633353›Full record

ArticleBMC health services research2024

Individualized participatory care planning for individuals with intellectual and developmental disabilities: a qualitative descriptive study.

Megann Y Dong, Leslie Meredith, Rachel Forrester-Jones, Anita Kothari, Dana Ryan, Bridget L Ryan, Maria Mathews, Shannon L Sibbald

Abstract read
In one paragraph

Article in BMC health services research, 2024. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 2 papers.

0numbers the graph read from it
0cells of the map it votes in
2citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

2 citing papers in PubMed.

  1. Article
  2. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

8 authors.

Megann Y DongDepartment of Family Medicine, Schulich School of Medicine & Dentistry, Western University, London, ON, N6G 2M1, Canada.
Leslie MeredithDepartment of Family Medicine, Schulich School of Medicine & Dentistry, Western University, London, ON, N6G 2M1, Canada.
Rachel Forrester-JonesSchool of Health Studies, Faculty of Health Sciences, Western University, London, ON, N6A 3K7, Canada.
Anita KothariSchool of Health Studies, Faculty of Health Sciences, Western University, London, ON, N6A 3K7, Canada.
Dana RyanDepartment of Family Medicine, Schulich School of Medicine & Dentistry, Western University, London, ON, N6G 2M1, Canada.
Bridget L RyanDepartment of Family Medicine, Schulich School of Medicine & Dentistry, Western University, London, ON, N6G 2M1, Canada.
Maria MathewsDepartment of Family Medicine, Schulich School of Medicine & Dentistry, Western University, London, ON, N6G 2M1, Canada. maria.mathews@schulich.uwo.ca.
Shannon L SibbaldDepartment of Family Medicine, Schulich School of Medicine & Dentistry, Western University, London, ON, N6G 2M1, Canada.

Funding

CIHR QAE 180992Western University C. Kingsley Allison Research Grant
6 · The paper itself

Abstract

backgroundGoal setting for persons within health and social care environments can be a challenging task; although health and social care settings aim to address a person's care needs, the literature tends to focus on health. Person-centred care should encompass the goals/needs/wants of the person, whether these goals focus on career, relationship, and/or health domains. To understand how a person-centred participatory goal setting process is carried out in a care environment, we used an integrated knowledge translation approach.

methodsWe conducted 11 semi-structured interviews with community-care staff to understand a person-centred planning process, including key components and impacts.

resultsThe interviews provide a thorough understanding of an implemented approach to person-centred plans, including its creation, implementation, and benefits (for the person-supported, family, friends, and staff). Person-centred plans provide a map with which to plan activities based on a persons' goals, interests, and capacities, and have positive impacts for the person-supported, family, friends, and staff.

conclusionsOur study highlights how a community-care organization can facilitate person-centred services through person-centred plans and has implications for wider uptake of person-centred plans in community-care organizations.

Indexed as

Developmental DisabilitiesIntellectual DisabilityPatient Care PlanningPatient-Centered CareQualitative ResearchAdultFemaleHumansInterviews as TopicMaleCommunity careIntegrated knowledge translationIntellectual and developmental disabilitiesPerson-centred carePerson-centred planningSocial care

Identifiers

PMID39633353
PMCPMC11619336

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LicenceCC BY-NC-ND
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Registered trials

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.