ArticlePediatric surgery international2024
Health literacy in parents of children with Hirschsprung disease: a novel study.
Article in Pediatric surgery international, 2024. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 5 papers, 1 of them a synthesis that pooled it.
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Who cites it
5 citing papers in PubMed, 1 synthesis or guideline pooled it.
- Examining the relationship between health literacy and eHealth literacy in adult populations: a systematic review and meta-analysis.Health promotion international · 2025Pooled it
- Measuring eHealth Literacy in the European Economic Area, Switzerland, and the United Kingdom: Scoping Review.Journal of medical Internet research · 2026Article
- Mobile health applications for parents of children with Hirschsprung disease: a requirement analysis.European journal of pediatrics · 2026Article
- Family resilience and its related factors among parents of children with congenital heart disease in China: a latent profile analysis.BMC public health · 2026Article
- Parental health literacy in anorectal malformation: needs and challenges.Pediatric surgery international · 2025Article
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Authors and funding
5 authors.
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Abstract
purposeTo explore health literacy (HL) among parents of children with Hirschsprung disease (HD).
methodsNorwegian-speaking parents of children under 16 who underwent HD surgery at a tertiary center were surveyed using the Health Literacy Questionnaire-Parent, electronic Health Literacy Scale, General Self-efficacy Scale, and a study-specific questionnaire. Demographics were collected and ethical approval was obtained.
resultsAmong 132 parents (77 mothers) of 91 children (median age 8 years), high HL scores appeared in the domains "understanding health information" and "active engagement", with lower scores in "provider support", "health information appraisal", and "social support". Higher HL correlated with parents aged over 40 and higher education. Lower scores were seen with non-exclusive Norwegian use at home and not living with the child's other parent. High electronic HL scores were common (mean 3.6, maximum score 5). 69% had high self-efficacy scores (score > 2, maximum score 4). Self-efficacy correlated strongly with higher HL scores.
conclusionParents of children with HD feel healthcare providers lack understanding of their child's challenges, experience limited social support and struggle with interpreting health information. We suggest targeted HL interventions for young, lower-educated, non-cohabitating parents and those not primarily speaking the official language at home.
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