Evidence map›Paper›PMID 39630173›Full record

ArticleEuropean journal of pediatrics2024

Proxy-reported health-related quality of life of children with systemic lupus erythematosus and well-being of caregivers: a cross-sectional survey among caregivers in China.

Ling Fei, Yiheng Wu, Lejing Guan, Yifei Shao, Fengting Li, Limin Yu, Zhirou Liu, Abdul Rafay, Lizhen Ye, Meiping Lu and 1 more

Abstract read
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In one paragraph

Article in European journal of pediatrics, 2024. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 2 papers.

0numbers the graph read from it
0cells of the map it votes in
2citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

2 citing papers in PubMed.

  1. Article
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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

11 authors.

Ling Fei *Department of Allergy Immunology and Rheumatology, Children's Hospital, Zhejiang University School of Medicine, National Clinical Research Center for Child Health, Hangzhou, 310052, Zhejiang Province, People's Republic of China.
Yiheng Wu *Tongji Medical College, Huazhong University of Science and Technology, Wuhan, 430000, Hubei Province, People's Republic of China.
Lejing GuanDepartment of Child Health Care, Children's Hospital, Zhejiang University School of Medicine, National Clinical Research Center for Child Health, Hangzhou, 310052, Zhejiang Province, People's Republic of China.
Yifei ShaoDepartment of Child Health Care, Children's Hospital, Zhejiang University School of Medicine, National Clinical Research Center for Child Health, Hangzhou, 310052, Zhejiang Province, People's Republic of China.
Fengting LiDepartment of Allergy Immunology and Rheumatology, Beijing Children's Hospital, Capital Medical University, National Center for Children's Health, Beijing, 100045, People's Republic of China.
Limin YuDepartment of Allergy Immunology and Rheumatology, Children's Hospital, Zhejiang University School of Medicine, National Clinical Research Center for Child Health, Hangzhou, 310052, Zhejiang Province, People's Republic of China.
Zhirou LiuDepartment of Allergy Immunology and Rheumatology, Children's Hospital, Zhejiang University School of Medicine, National Clinical Research Center for Child Health, Hangzhou, 310052, Zhejiang Province, People's Republic of China.
Abdul RafaySchool of Medicine, Imperial College London, London, MK5 6AL, UK.
Lizhen YeDepartment of Public Health, Erasmus MC - University Medical Center Rotterdam, Rotterdam, 3015 GD, South Holland, the Netherlands.
Meiping LuDepartment of Allergy Immunology and Rheumatology, Children's Hospital, Zhejiang University School of Medicine, National Clinical Research Center for Child Health, Hangzhou, 310052, Zhejiang Province, People's Republic of China. meipinglu@zju.edu.cn.
Guannan BaiDepartment of Child Health Care, Children's Hospital, Zhejiang University School of Medicine, National Clinical Research Center for Child Health, Hangzhou, 310052, Zhejiang Province, People's Republic of China. guannanbai@zju.edu.cn.

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

Systemic lupus erythematosus (SLE) in children is a severe chronic illness. We aimed to assess the proxy-reported health-related quality of life (HRQoL) of children with SLE and the well-being of their caregivers. In total, 173 caregivers whose children were diagnosed with SLE were recruited from a tertiary children's hospital. The proxy-reported Pediatric Quality of Life Instrument™ Version 4.0 Generic Core Module (PedsQL™ 4.0 GCM) was used to measure the HRQoL of children, and the 5-item World Health Organization Well-Being Index (WHO-5) was applied to measure caregivers' well-being. T-tests and one-way ANOVA assessed differences in scale scores and total score of PedsQL

conclusionThis study comprehensively analyzes proxy-reported HRQoL of SLE children in China and identifies multiple associated factors. The caregiver's well-being was correlated to the children's HRQoL. We emphasize the necessity for comprehensive support for children with SLE, their caregivers, and extended family members. WHAT IS KNOWN: • Systemic lupus erythematosus (SLE) may impact the health-related quality of life for both the affected children and their families. • Most of such studies were conducted in developed countries. WHAT IS NEW: • This study provided comprehensive data on health-related quality of life of SLE children and wellbeing of their caregivers in China.

Indexed as

CaregiversLupus Erythematosus, SystemicQuality of LifeAdolescentAdultChildChild, PreschoolChinaCross-Sectional StudiesFemaleHumansLinear ModelsMaleMiddle AgedProxySurveys and QuestionnairesCaregiverChildrenQuality of lifeSystemic lupus erythematosusWell-being

Identifiers

PMID39630173

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.