ArticlePloS one2024
Exploring caregiver experiences and support needs in end-of-life care for people living with HIV: A scoping review protocol.
Article in PloS one, 2024. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 1 paper.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
1 citing paper in PubMed.
- Co-Designing Person- and Family-Centered Care for Older Adults Living With HIV: Protocol for a Community-Based Participatory Study.JMIR research protocols · 2026Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
5 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
BACKGROUND AND
objectivesEnd-of-life care supports individuals in the last few weeks or months of their life and their caregivers, offering psychosocial support, symptom management and relief, and resources. While some of the first public end-of-life care facilities were established due to HIV/AIDS, the current needs of caregivers for people living with end-stage HIV are not well understood. Caregivers provide two-thirds of the care for people living with HIV, yet their specific support needs and experiences are under-researched. Existing strategies often use a "one-size-fits-all" approach, which may not address the unique challenges faced by these caregivers, such as stigma and lack of social support. This study aims to synthesize the literature on the end-of-life care experiences and needs of caregivers for individuals living with HIV. RESEARCH DESIGN AND
methodsA scoping review, guided by Arksey and O'Malley's framework and the Joanna Briggs Institute's recommendations, will be conducted. An Information Specialist will assist in developing a search strategy to be applied across databases like Medline, Embase, PsycINFO, and PubMed. Search results from each database will be imported into Covidence software for duplicate removal and title and abstract screening. Two researchers will independently screen studies using the 'Population-Concept-Context' (PCC) framework, with screening conducted at two levels: title and abstract, and full-text. The inclusion criteria will be piloted on a random sample of articles to ensure inter-rater agreement (kappa statistic >0.61). Disagreements will be resolved through discussion or with the involvement of a content expert if needed. Final selections will be reported using the PRISMA flow diagram, and reasons for exclusion will be documented. DISCUSSION AND IMPLICATIONS: The findings from this scoping review will provide valuable insights into the end-of-life care experiences and support needs of caregivers for individuals living with HIV. By identifying common themes and challenges, such as caregiver fatigue, emotional strain, stigma, and lack of social support, this study will underscore the inadequacy of the current "one-size-fits-all" approach in addressing the unique needs of these caregivers. This research has the potential to influence both clinical practice and policy by advocating for more personalized support strategies within end-of-life care settings.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.