Evidence map›Paper›PMID 39620124›Full record

ArticleInternational journal of population data science2024

Generating synthetic identifiers to support development and evaluation of data linkage methods.

Joseph Lam, Andy Boyd, Robin Linacre, Ruth Blackburn, Katie Harron

Abstract read
In one paragraph

Article in International journal of population data science, 2024. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 1 paper.

0numbers the graph read from it
0cells of the map it votes in
1citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

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2 · The registry

The trial behind it

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3 · Its place in the literature

Who cites it

1 citing paper in PubMed.

  1. False Discovery Estimation in Record Linkage.Statistics in medicine · 2025
    Article
4 · The record

Corrections and comments

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5 · Who and what money

Authors and funding

5 authors.

Joseph LamPopulation, Policy & Practice Research and Teaching Department, UCL Great Ormond Street Institute of Child Health, London, United Kingdom.
Andy BoydPopulation Health Sciences, Bristol Medical School, University of Bristol, Bristol, United Kingdom.
Robin LinacreUK Ministry of Justice, London, United Kingdom.
Ruth BlackburnPopulation, Policy & Practice Research and Teaching Department, UCL Great Ormond Street Institute of Child Health, London, United Kingdom.
Katie HarronPopulation, Policy & Practice Research and Teaching Department, UCL Great Ormond Street Institute of Child Health, London, United Kingdom.

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

Introduction: Careful development and evaluation of data linkage methods is limited by researcher access to personal identifiers. One solution is to generate synthetic identifiers, which do not pose equivalent privacy concerns, but can form a 'gold-standard' linkage algorithm training dataset. Such data could help inform choices about appropriate linkage strategies in different settings. Objectives: We aimed to develop and demonstrate a framework for generating synthetic identifier datasets to support development and evaluation of data linkage methods. We evaluated whether replicating associations between attributes and identifiers improved the utility of the synthetic data for assessing linkage error. Methods: We determined the steps required to generate synthetic identifiers that replicate the properties of real-world data collection. We then generated synthetic versions of a large UK cohort study (the Avon Longitudinal Study of Parents and Children; ALSPAC), according to the quality and completeness of identifiers recorded over several waves of the cohort. We evaluated the utility of the synthetic identifier data in terms of assessing linkage quality (false matches and missed matches). Results: Comparing data from two collection points in ALSPAC, we found within-person disagreement in identifiers (differences in recording due to both natural change and non-valid entries) in 18% of surnames and 12% of forenames. Rates of disagreement varied by maternal age and ethnic group. Synthetic data provided accurate estimates of linkage quality metrics compared with the original data (within 0.13-0.55% for missed matches and 0.00-0.04% for false matches). Incorporating associations between identifier errors and maternal age/ethnicity improved synthetic data utility. Conclusions: We show that replicating dependencies between attribute values (e.g. ethnicity), values of identifiers (e.g. name), identifier disagreements (e.g. missing values, errors or changes over time), and their patterns and distribution structure enables generation of realistic synthetic data that can be used for robust evaluation of linkage methods.

Indexed as

AlgorithmsCohort StudiesFemaleHumansLongitudinal StudiesUnited KingdomALSPACdata linkageKeywords record linkagelinkage evaluationsynthetic datasynthetic identifiers

Identifiers

PMID39620124
PMCPMC11606631

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.