Evidence map›Paper›PMID 39612211›Full record

Trial reportJournal of medical Internet research2024

Perceptions of Illness Control, Coherence, and Self-Efficacy Following a Web-Based Lifestyle Program for Multiple Sclerosis: A Qualitative Analysis of Semistructured Interviews.

Rebekah Davenport, William Bevens, Sandra Neate, Pia Jelinek, Maggie Yu, George Jelinek, Jeanette Reece

Abstract readRandomized Controlled Trial
In one paragraph

Trial report in Journal of medical Internet research, 2024. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 4 papers.

0numbers the graph read from it
0cells of the map it votes in
4citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

4 citing papers in PubMed.

  1. Trial
  2. Article
  3. Article
  4. Lifestyle changes and patient-reported outcomes over five years in a sample of people with multiple sclerosis after a single multimodal intensive lifestyle education workshop.Neurological sciences : official journal of the Italian Neurological Society and of the Italian Society of Clinical Neurophysiology · 2025
    Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

7 authors.

Rebekah DavenportMelbourne School of Psychological Sciences, Faculty of Medicine, Dentistry & Health Sciences, The University of Melbourne, Melbourne, Australia.ORCID 0000-0003-0426-2158
William BevensDepartment of Psychiatry, IN STEP Children's Mental Health Research Center, University of California, San Diego, La Jolla, CA, United States.ORCID 0000-0001-6944-6500
Sandra NeateMelbourne School of Theology, Centre for Epidemiology and Biostatistics, The University of Melbourne, Melbourne, Australia.ORCID 0000-0002-0761-9848
Pia JelinekMelbourne School of Theology, Centre for Epidemiology and Biostatistics, The University of Melbourne, Melbourne, Australia.ORCID 0000-0001-7876-8667
Maggie YuMelbourne School of Theology, Centre for Epidemiology and Biostatistics, The University of Melbourne, Melbourne, Australia.ORCID 0000-0002-2022-4939
George JelinekMelbourne School of Theology, Centre for Epidemiology and Biostatistics, The University of Melbourne, Melbourne, Australia.ORCID 0000-0001-6157-0910
Jeanette ReeceMelbourne School of Theology, Centre for Epidemiology and Biostatistics, The University of Melbourne, Melbourne, Australia.ORCID 0000-0003-2897-0271

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

backgroundEvidence suggests that illness perceptions held by people living with multiple sclerosis (MS) impact affective distress and physical health outcomes. In a randomized controlled trial, we developed 2 MS Online Courses-the standard care course and the intervention course (IC). The IC was adapted from an evidence-based lifestyle program. Modifying lifestyle risk factors offers an opportunity to impact illness perceptions. Research on illness perceptions in people living with MS has focused predominately on quantitative methods.

objectiveThis study aimed to explore the experiences and health outcomes of randomized controlled trial participants, including individuals' perceived changes in attitudes toward MS and their health (ie, illness perceptions).

methodsQualitative responses provided by 38 participants (22 in the IC and 16 in the standard care course) were derived from semistructured interviews 1 month after completing the MS Online Course. The impact of course engagement and lifestyle modification on illness perceptions was explored using inductive thematic analysis.

resultsThemes of changes in illness perceptions were most prominent in the IC arm. Qualitative responses from 22 people living with MS informed the development of three themes: "self-efficacy for disease management," "personal control," and "illness coherence."

conclusionsFindings provide novel insights into the formation and modification of illness perceptions. Lifestyle modification may serve as a valuable adjunct to clinician-administered therapies, improving the sense of personal control over MS, illness coherence, and self-efficacy for disease management.

trial registrationAustralian New Zealand Clinical Trials Registry ACTRN12621001605886; https://tinyurl.com/2vyve9p9. INTERNATIONAL REGISTERED REPORT IDENTIFIER (IRRID): RR2-10.1186/s12883-023-03298-0.

Indexed as

Life StyleMultiple SclerosisQualitative ResearchSelf EfficacyAdultFemaleHumansInternetInterviews as TopicMaleMiddle AgedPerceptiondisease managementhealth behaviorillness coherenceillness perceptionslifestyle modificationMSmultiple sclerosispersonal control perceptionsqualitativeself-efficacythematic analysis

Identifiers

PMID39612211
PMCPMC11645510

What OpenQuestion holds

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Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.