Evidence map›Paper›PMID 39612084›Full record

SynthesisJournal of cancer survivorship : research and practice2026

Insurance, legal, and financial hardships of childhood and adolescent cancer survivors-a systematic review.

Martina Ospelt, Pauline Holmer, Eva Maria Tinner, Luzius Mader, Manya Hendriks, Gisela Michel, Sonja Kälin, Katharina Roser

Abstract readSystematic Review
PubMed Full text at PMC Publisher
In one paragraph

Synthesis in Journal of cancer survivorship : research and practice, 2026. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 6 papers.

0numbers the graph read from it
0cells of the map it votes in
6citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

6 citing papers in PubMed.

  1. Review
  2. Article
  3. Article
  4. Article
  5. Article
  6. Review
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

8 authors.

Martina OspeltFaculty of Health Sciences and Medicine, University of Lucerne, Lucerne, Switzerland.
Pauline HolmerFaculty of Health Sciences and Medicine, University of Lucerne, Lucerne, Switzerland.
Eva Maria TinnerDivision of Pediatric Hematooncology, Inselspital, University Hospital Bern, Bern, Switzerland.
Luzius MaderCancer Registry Bern Solothurn, University of Bern, Bern, Switzerland.
Manya HendriksFaculty of Health Sciences and Medicine, University of Lucerne, Lucerne, Switzerland.
Gisela MichelFaculty of Health Sciences and Medicine, University of Lucerne, Lucerne, Switzerland.
Sonja KälinFaculty of Health Sciences and Medicine, University of Lucerne, Lucerne, Switzerland.
Katharina RoserFaculty of Health Sciences and Medicine, University of Lucerne, Lucerne, Switzerland. katharina.roser@unilu.ch.

Funding

Swiss Cancer Research Foundation KFS-5384-08-2021Swiss National Science Foundation 10001C_182129/1
6 · The paper itself

Abstract

purposeChildhood and adolescent cancer survivors (CACS) experience medical and psychosocial adverse effects. Attention widens to include issues such as socio-bureaucratic hardships. This systematic review synthesized the available evidence on insurance, legal, and financial hardships to better understand the broader picture of socio-bureaucratic hardships as distinct but interrelated types of hardships.

methodsA systematic search of PubMed, Scopus, CINAHL, and PsycINFO was conducted for publications related to childhood and adolescent cancer; survivors; and insurance, legal, and financial hardships. Narrative data synthesis was performed on the extracted data.

resultsThis review included N = 58 publications, originating from 14 different countries, most from the last decade (n = 39). We found that a considerable proportion of CACS experience insurance and financial hardships, including foregoing medical care due to financial constraints, problems paying medical bills, and difficulties accessing loans or insurances. Legal hardships, such as workplace discrimination, were less frequently investigated and reported.

conclusionsThis systematic review highlights the many interrelated socio-bureaucratic hardships faced by CACS. It is important that these hardships are not underestimated or neglected. Our findings can serve as a basis for enhancing and expanding supportive care services and help inform collaborative efforts from research, policy, and practice. IMPLICATIONS FOR CANCER SURVIVORS: This review emphasizes the importance of recognizing and addressing the socio-bureaucratic challenges that extend beyond medical care. Survivors should be informed about available options and be aware of their legal rights to identify instances of injustice and seek appropriate support.

Indexed as

Cancer SurvivorsFinancial StressInsurance, HealthNeoplasmsAdolescentChildHumansChildhood cancerFinancial hardshipsInsurance hardshipsLegal hardshipsSocio-bureaucratic hardshipsSystematic review

Identifiers

PMID39612084
PMCPMC13144184

What OpenQuestion holds

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Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.