Evidence map›Paper›PMID 39611201›Full record

ArticleRheumatology advances in practice2024

Recording of non-musculoskeletal manifestations, comorbidities and safety outcomes in European spondyloarthritis registries: a survey.

Zohra F Ahmadzay, Jette Heberg, Jacob B Jørgensen, Lykke M Ørnbjerg, Mikkel Østergaard, Signe Møller-Bisgaard, Brigitte Michelsen, Anne Gitte Loft, Gareth T Jones, Pasoon Hellamand and 35 more

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Article in Rheumatology advances in practice, 2024. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 4 papers.

0numbers the graph read from it
0cells of the map it votes in
4citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

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Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

4 citing papers in PubMed.

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4 · The record

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5 · Who and what money

Authors and funding

45 authors.

Zohra F AhmadzayCopenhagen Center for Arthritis Research (COPECARE), Center for Rheumatology and Spine Diseases, Rigshospitalet, Glostrup, Denmark.ORCID https://orcid.org/0009-0007-7675-4844
Jette HebergCopenhagen Center for Arthritis Research (COPECARE), Center for Rheumatology and Spine Diseases, Rigshospitalet, Glostrup, Denmark.ORCID https://orcid.org/0000-0001-6129-9235
Jacob B JørgensenCopenhagen Center for Arthritis Research (COPECARE), Center for Rheumatology and Spine Diseases, Rigshospitalet, Glostrup, Denmark.ORCID https://orcid.org/0000-0002-6533-6336
Lykke M ØrnbjergCopenhagen Center for Arthritis Research (COPECARE), Center for Rheumatology and Spine Diseases, Rigshospitalet, Glostrup, Denmark.ORCID https://orcid.org/0000-0002-7832-6831
Mikkel ØstergaardCopenhagen Center for Arthritis Research (COPECARE), Center for Rheumatology and Spine Diseases, Rigshospitalet, Glostrup, Denmark.ORCID https://orcid.org/0000-0003-3690-467X
Signe Møller-BisgaardCopenhagen Center for Arthritis Research (COPECARE), Center for Rheumatology and Spine Diseases, Rigshospitalet, Glostrup, Denmark.ORCID https://orcid.org/0000-0002-4507-0630
Brigitte MichelsenCopenhagen Center for Arthritis Research (COPECARE), Center for Rheumatology and Spine Diseases, Rigshospitalet, Glostrup, Denmark.ORCID https://orcid.org/0000-0003-0103-2840
Anne Gitte LoftDepartment of Rheumatology, Aarhus University Hospital, Aarhus, Denmark.ORCID https://orcid.org/0000-0001-6374-841X
Gareth T JonesAberdeen Centre for Arthritis and Musculoskeletal Health (Epidemiology Group), University of Aberdeen, Aberdeen, UK.ORCID https://orcid.org/0000-0003-0016-7591
Pasoon HellamandDepartment of Rheumatology and Clinical Immunology, Amsterdam University Medical Centers, Amsterdam, The Netherlands.ORCID https://orcid.org/0000-0002-2251-3435
Almut SchererSwiss Clinical Quality Management Foundation, Statistics Group, Zurich, Switzerland.ORCID https://orcid.org/0000-0001-7382-4092
Michael J NissenDepartment of Rheumatology, Geneva University Hospital, Geneva, Switzerland.ORCID https://orcid.org/0000-0002-6326-1764
Karel PavelkaInstitute of Rheumatology, Prague, Czech Republic.ORCID https://orcid.org/0000-0003-1952-8422
Jakub ZávadaInstitute of Rheumatology, Prague, Czech Republic.ORCID https://orcid.org/0000-0002-9802-6545
Karin LaasDepartment of Rheumatology, East-Tallinn Central Hospital, Tallinn, Estonia.
Sigrid VorobjovNational Institute for Health Development, Tallinn, Estonia.
Dan NordströmDepartments of Medicine and Rheumatology, Helsinki University Hospital, Helsinki, Finland.ORCID https://orcid.org/0000-0002-3661-6072
Tuulikki Sokka-IslerUniversity of Eastern Finland and Hospital Nova Jyväskylä, Jyväskylä, Finland.
Anne C RegiererDeutsches Rheuma-Forschungszentrum Berlin, Epidemiologie, Berlin, Germany.ORCID https://orcid.org/0000-0003-2456-4049
Andreas ReichDeutsches Rheuma-Forschungszentrum Berlin, Epidemiologie, Berlin, Germany.ORCID https://orcid.org/0000-0002-3729-0772
Bjorn GudbjornssonCentre for Rheumatology Research, Landspitali University Hospital, Reykjavik, Iceland.ORCID https://orcid.org/0000-0003-4631-6505
Katrin ThorarinsdottirCentre for Rheumatology Research, Landspitali University Hospital, Reykjavik, Iceland.ORCID https://orcid.org/0000-0003-2708-1990
Florenzo IannoneRheumatology Unit, Dipartimento di Medicina di Precisione e Rigenerativa e Area Jonica, University of Bari, Bari, Italy.ORCID https://orcid.org/0000-0003-0474-5344
Ennio Giulio FavalliDepartment of Clinical Sciences and Community Health, University of Milan, Milan, Italy.ORCID https://orcid.org/0000-0003-1471-6467
Marleen van de SandeAmsterdam Rheumatology Immunology Center (ARC), Amsterdam UMC, Amsterdam, The Netherlands.ORCID https://orcid.org/0000-0003-0966-878X
Sella Aarrestad ProvanCenter for Treatment of Rheumatic and Musculoskeletal Diseases (REMEDY), Diakonhjemmet Hospital, Oslo, Norway.ORCID https://orcid.org/0000-0001-5442-902X
Tore K KvienCenter for Treatment of Rheumatic and Musculoskeletal Diseases (REMEDY), Diakonhjemmet Hospital, Oslo, Norway.
Ana Maria RodriguesReuma.pt, Sociedade Portuguesa de Reumatologia, Lisbon, Portugal.ORCID https://orcid.org/0000-0003-2046-8017
Cátia F GonçalvesReuma.pt, Sociedade Portuguesa de Reumatologia, Lisbon, Portugal.ORCID https://orcid.org/0000-0001-5221-5458
Catalin CodreanuCenter for Rheumatic Diseases, University of Medicine and Pharmacy, Bucharest, Romania.ORCID https://orcid.org/0000-0001-6600-9946
Corina MogosanCenter for Rheumatic Diseases, University of Medicine and Pharmacy, Bucharest, Romania.ORCID https://orcid.org/0000-0002-2790-4646
Ziga RotarDepartment of Rheumatology, University Medical Centre Ljubljana, Ljubljana, Slovenia.ORCID https://orcid.org/0000-0002-9323-9189
Katja Perdan PrikmajerDepartment of Rheumatology, University Medical Centre Ljubljana, Ljubljana, Slovenia.ORCID https://orcid.org/0000-0001-7778-4016
Isabel CastrejonDepartment of Rheumatology. Hospital General, Universitario Gregorio Marañón, Madrid, Spain.ORCID https://orcid.org/0000-0003-1811-2417
Lucía Otero-VarelaResearch Unit, Spanish Society of Rheumatology, Madrid, Spain.ORCID https://orcid.org/0000-0002-4406-6314
Daniela Di GiuseppeClinical Epidemiology Division, Department of Medicine Solna, Karolinska Institutet, Stockholm, Sweden.ORCID https://orcid.org/0000-0003-3817-8288
Johan K WallmanDepartment of Clinical Sciences Lund, Rheumatology, Skåne University Hospital, Lund University, Lund, Sweden.ORCID https://orcid.org/0000-0002-4915-2924
Adrian CiureaDepartment of Rheumatology, University Hospital Zurich, University of Zurich, Zurich, Switzerland.ORCID https://orcid.org/0000-0002-7870-7132
Burkhard MöllerDepartment Rheumatology and Immunology, Inselspital - University Hospital Bern, Switzerland.ORCID https://orcid.org/0000-0001-8769-6167
Gökçe Kenar-ArtınDepartment of Internal Medicine, Division of Rheumatology, Dokuz Eylul School of Medicine, Izmir, Turkey.ORCID https://orcid.org/0000-0002-0485-1369
Tuba Demirci YıldırımDepartment of Internal Medicine, Division of Rheumatology, Dokuz Eylul School of Medicine, Izmir, Turkey.ORCID https://orcid.org/0000-0003-3186-0591
Gary J MacfarlaneAberdeen Centre for Arthritis and Musculoskeletal Health (Epidemiology Group), University of Aberdeen, Aberdeen, UK.ORCID https://orcid.org/0000-0003-2322-3314
Ovidiu RotariuAberdeen Centre for Arthritis and Musculoskeletal Health (Epidemiology Group), University of Aberdeen, Aberdeen, UK.ORCID https://orcid.org/0000-0003-1865-5390
Bente GlintborgDepartment of Clinical Medicine, University of Copenhagen, Copenhagen, Denmark.ORCID https://orcid.org/0000-0002-8931-8482
Merete Lund HetlandCopenhagen Center for Arthritis Research (COPECARE), Center for Rheumatology and Spine Diseases, Rigshospitalet, Glostrup, Denmark.ORCID https://orcid.org/0000-0003-4229-6818

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

Objectives: Real-world evidence is needed to inform treatment strategies for patients with PsA and axial SpA (axSpA) who have non-musculoskeletal manifestations (NMMs), various risk factors and comorbidities. International collaboration is required to ensure statistical power and to enhance generalizability. The first step forward is identifying which data are currently being collected. Across 17 registries participating in the European Spondyloarthritis Research Collaboration (EuroSpA), we aimed to map recording practices for NMMs, comorbidities and safety outcomes in patients with PsA and axSpA. Methods: Through a survey with 4,420 questionnaire items, we explored the recording practices of 58 pre-defined conditions (i.e. NMMs, comorbidities and safety outcomes) covering 10 disease areas. In all registries we mapped for each condition whether it was recorded, the recording procedure and the potential to identify it through linkage to other national registries. Results: Conditions were generally recorded at entry into the registry and clinical follow-up visits using a pre-specified list or a coding system. Most registries recorded conditions within the following disease areas: NMMs (number of registries, Conclusion: A wide range of conditions were consistently recorded across the registries. The recording practices of many conditions and disease areas were comparable across the registries. Our findings support the potential for future collaborative research.

Indexed as

biological therapiescomorbidityDMARDsJAK inhibitorsmultimorbidityroutinely collected dataspondyloarthritis

Identifiers

PMID39611201
PMCPMC11604170

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.