Evidence map›Paper›PMID 39610566›Full record

ArticleCureus2024

Effectiveness of a Novel Multimodal Intervention for Family Caregivers of Persons With Age-Related Macular Degeneration: A Randomized Controlled Trial.

Richard Kha, Ivan Jin, Diana Tang, Gerald Liew, Ashley Craig, George Burlutsky, Paul Mitchell, Bamini Gopinath

Abstract read
In one paragraph

Article in Cureus, 2024. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.

0numbers the graph read from it
0cells of the map it votes in
0citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

0 citing papers in PubMed.

No citing paper in PubMed yet.

4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

8 authors.

Richard KhaCentre for Vision Research, Westmead Institute for Medical Research, Westmead, AUS.
Ivan JinCentre for Vision Research, Westmead Institute for Medical Research, Westmead, AUS.
Diana TangMacquarie University Hearing, Macquarie University, North Ryde, AUS.
Gerald LiewCentre for Vision Research, Westmead Institute for Medical Research, Westmead, AUS.
Ashley CraigMacquarie University Hearing, Macquarie University, North Ryde, AUS.
George BurlutskyCentre for Vision Research, Westmead Institute for Medical Research, Westmead, AUS.
Paul MitchellCentre for Vision Research, Westmead Institute for Medical Research, Westmead, AUS.
Bamini GopinathMacquarie University Hearing, Macquarie University, North Ryde, AUS.

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

Purpose Age-related macular degeneration (AMD) is a leading cause of visual impairment in older adults. Individuals affected by AMD often require regular physical and emotional support from family caregivers. Carers of people with AMD endure significant physical burdens, emotional distress, increased financial stress, and disruptions due to their lifestyle and retirement plans as a direct consequence of the AMD caregiving experience. Despite this, there are currently no interventions targeted toward family caregivers of AMD patients. We evaluated the efficacy of a novel intervention aiming to improve the burden and well-being of family carers of persons with AMD. Methods Family carers of relatives with AMD were primarily recruited through private eye clinics and randomized 1:1 to either receive a 10-week intervention of mail-delivered cognitive behavioral therapy (M-CBT) and optional telephone-delivered group counseling (n = 47) or to a wait-list control group (n = 47). Outcome measures were assessed pre-intervention (baseline) and six months post-intervention. These included treatment acceptability, caregiver burden, presence of depressive symptoms, self-efficacy, quality of life (QoL), and fatigue. Results A total of 94 participants were enrolled, with 47 randomized to each arm. Of those who completed the intervention, 30 (97%) participants reported that they were satisfied/very satisfied with the intervention. Twenty-seven (87%) participants indicated that they would recommend the program to others, and 26 (84%) thought that the program was worth their time. Intervention participants demonstrated several positive nonsignificant improvements versus the control group at six months: burden (P= 0.53), depressive symptoms (P= 0.19), general self-efficacy (P= 0.14), QoL (P= 0.17) and fatigue (P= 0.15). Conclusions Study findings demonstrate that combined M-CBT and telephone counseling intervention appear to be feasible, but did not lead to nonsignificant improvements in outcome measures such as burden in family carers of persons with AMD.

Indexed as

age-related macular degeneration (amd)cognitive behavioural therapyfamily caregiverguidance and counsellingquality of life (qol)

Identifiers

PMID39610566
PMCPMC11602414

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.