Evidence map›Paper›PMID 39609661›Full record

ArticleBMC geriatrics2024

A comprehensive experience-based framework of actionable priorities to enhance Canada's health and social care system: discussions with older persons, clinicians, managers, and decision-makers using nominal group technique.

Deniz Cetin-Sahin, Marwa Ilali, Alexandra Lemay-Compagnat, Geneviève Arsenault-Lapierre, Clara Bolster-Foucault, Amélie Quesnel-Vallée, Isabelle Vedel

Abstract read
In one paragraph

Article in BMC geriatrics, 2024. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 2 papers.

0numbers the graph read from it
0cells of the map it votes in
2citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

2 citing papers in PubMed.

  1. Article
  2. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

7 authors.

Deniz Cetin-SahinLady Davis Institute for Medical Research at the Jewish General Hospital, 3755 Chem. de la Côte-Sainte-Catherine, Montreal, QC, H3T 1E2, Canada. deniz.sahin@mail.mcgill.ca.
Marwa IlaliDepartment of Family Medicine, McGill University, 5858 chemin de la Côte des Neiges, 3rd floor, Montreal, QC, H3S 1Z1, Canada.
Alexandra Lemay-CompagnatLady Davis Institute for Medical Research at the Jewish General Hospital, 3755 Chem. de la Côte-Sainte-Catherine, Montreal, QC, H3T 1E2, Canada.
Geneviève Arsenault-LapierreCenter for Research and Expertise in Social Gerontology, Centre intégré universitaire de santé et services sociaux du Centre-Ouest de l'Ile-de-Montréal, 5800, boul. Cavendish, suite 600, Côte Saint-Luc, QC, H4W 2T5, Canada.
Clara Bolster-FoucaultDepartment of Epidemiology, Biostatistics, and Occupational Health, McGill University, 2001 McGill College Ave, Montreal, QC, H3A 1Y7, Canada.
Amélie Quesnel-ValléeDepartment of Epidemiology, Biostatistics, and Occupational Health, McGill University, 2001 McGill College Ave, Montreal, QC, H3A 1Y7, Canada.
Isabelle VedelDepartment of Family Medicine, McGill University, 5858 chemin de la Côte des Neiges, 3rd floor, Montreal, QC, H3S 1Z1, Canada. isabelle.vedel@mcgill.ca.

Funding

CIHR 166058
6 · The paper itself

Abstract

backgroundExisting frameworks of older persons' experiences in health and social care systems are usually based on single stakeholder perspectives and focused on limited aspects that are independent from one another. This study aimed to describe such experiences from the perspective of diverse stakeholders and develop a comprehensive experience-based framework for actionable priorities to enhance Canada's health and social care system.

methodsWe adapted a nominal group technique with a qualitative approach. We formed four groups of stakeholders (4 older persons, 7 clinicians, 5 managers, 4 decision-makers) in the province of Quebec. First, participants individually completed a questionnaire to rank the six domains of an international set of metrics of quality of care for older persons in terms of their importance. Then, we conducted a remote discussion with each stakeholder group, obtained consensus on the priority domains, and explored personal/professional experiences explaining prioritization processes and what changes are needed. An inductive-deductive thematic analysis was conducted to develop a framework for actionable health and social care priorities.

resultsThe framework included six key categories revolving around a core category of 'health equity'. (1) 'Access to services and care' focused on improved accessibility of healthcare navigators, primary and home care services, and end-of life care. (2) 'Respect for older persons' involved individuality and uniqueness, daily needs, advocacy in defence of vulnerability, and decision-making valuing care preferences. (3) 'Involvement of family and friends' encompassed formal recognition, responsibilities, and trajectories associated with caregiving. (4) 'Communication and education' consisted of adaptive communication between older persons, caregivers, and professionals and societal-level education and awareness-raising. (5) 'Coordination and integration of care' comprised health and social services organization, cross-sectoral approaches, and interdisciplinary collaboration. (6) 'Responsiveness to evolving needs' of older persons involved timely response to health transitions and promoting holistic approaches.

conclusionsThis study illustrates the complex challenges of caring for older persons. The framework suggests several areas for improvement in care practices and policies for older persons and caregivers. Proposed intervention targets include public healthcare system navigators, standardized goals of care practices respecting persons' wishes, formal recognition of caregiver contributions, society-level education, cross-sectoral initiatives, and holistic approaches.

Indexed as

Health PrioritiesAgedAged, 80 and overCanadaDecision MakingDelivery of Health CareFemaleHealth PersonnelHumansMaleQuebecCaregiversExperiencesFrameworkHealth services for the agedQuality of health care

Identifiers

PMID39609661
PMCPMC11603972

What OpenQuestion holds

Textmetadata
LicenceCC BY-NC-ND
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.