ArticleBMJ supportive & palliative care2025
End of life care in paediatric settings: UK national survey.
Article in BMJ supportive & palliative care, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 7 papers, 1 of them a synthesis that pooled it.
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Who cites it
7 citing papers in PubMed, 1 synthesis or guideline pooled it.
- Economic costs of health and social care for a child with a life-limiting condition in their last year of life: a systematic review.BMJ paediatrics open · 2025Pooled it
- Bereavement care practices: A national survey of Australian paediatric intensive care units.Critical care and resuscitation : journal of the Australasian Academy of Critical Care Medicine · 2026Article
- High-intensity treatment is common at the end of life among children and young people who died of cancer: a retrospective cohort study.BMJ paediatrics open · 2026Article
- An optimisation framework for resource allocation in palliative and end-of-life care.Scientific reports · 2026Article
- Parents' experiences of paediatric end-of-life care in the UK: a multisite qualitative study.BMJ supportive & palliative care · 2025Article
- Parents' experiences of the financial and employment impacts of their child receiving end-of-life care: a national qualitative study.BMC palliative care · 2025Article
- Healthcare professionals' perspectives of providing end-of-life care for infants, children and young people in acute settings: A multi-site qualitative study.Palliative medicine · 2025Article
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Authors and funding
18 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
objectivesTo describe end of life care in settings where, in the UK, most children die; to explore commonalities and differences within and between settings; and to test whether there are distinct, alternative models of end of life care.
methodsAn online survey of UK neonatal units (NNUs), paediatric intensive care units (PICUs) and children/young people's cancer principal treatment centres (PTCs) collected data on aspects of service organisation, delivery and practice relevant to end of life outcomes or experiences (referred to as the core elements of end of life care) across three domains: care of the child, care of the parent and bereavement care.
results91 units/centres returned a survey (37% response rate). There was variation within and between settings in terms of whether and how core elements of end of life care were provided. PTCs were more likely than NNUs and PICUs to have palliative care expertise strongly embedded in the multidisciplinary team (MDT), and to have the widest range of clinical and non-clinical professions represented in the MDT. However, bereavement care was more limited. Many settings were limited in the practical and psychosocial-spiritual care and support available to parents.
conclusionsChildren at end of life, and families, experience differences in care that evidence indicates matter to them and impact outcomes. Some differences appear to be related to the type of setting. Subsequent stages of this research (the ENHANCE study) will investigate the relative contribution of these core elements of end of life care to child/parent outcomes and experiences.
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