Evidence map›Paper›PMID 39604648›Full record

ArticleResearch in health services & regions2024

Pediatric palliative care in Brazil: reflections on end of life based on geographic mapping.

Esther Angélica Luiz Ferreira, Leandro Saito, Maycon Rodrigo Sarracini, Cristina Helena Bruno, Augustus Relo Mattos, Cristina Ortiz Sobrinho Valete, Rodrigo Bezerra de Menezes Reiff

Abstract read
In one paragraph

Article in Research in health services & regions, 2024. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 2 papers.

0numbers the graph read from it
0cells of the map it votes in
2citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

2 citing papers in PubMed.

  1. Review
  2. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

7 authors.

Esther Angélica Luiz FerreiraDepartment of Medicine at the Federal University of São Carlos (DMed UFSCar), São Carlos, SP, Brazil. estherferreira@ufscar.br.ORCID http://orcid.org/0000-0003-2582-9045
Leandro SaitoDepartment of Medicine at the Federal University of São Carlos (DMed UFSCar), São Carlos, SP, Brazil.ORCID https://orcid.org/0009-0008-3266-3817
Maycon Rodrigo SarraciniCenter for Studies in Pain and Palliative Care, Federal University of São Carlos, São Carlos, SP, Brazil.ORCID https://orcid.org/0009-0003-3717-5445
Cristina Helena BrunoDepartment of Medicine at the Federal University of São Carlos (DMed UFSCar), São Carlos, SP, Brazil.ORCID https://orcid.org/0000-0001-7027-9068
Augustus Relo MattosDepartment of Medicine at the Federal University of São Carlos (DMed UFSCar), São Carlos, SP, Brazil.ORCID https://orcid.org/0000-0002-0514-3575
Cristina Ortiz Sobrinho ValeteDepartment of Medicine at the Federal University of São Carlos (DMed UFSCar), São Carlos, SP, Brazil.ORCID https://orcid.org/0000-0002-6925-4346
Rodrigo Bezerra de Menezes ReiffDepartment of Medicine at the Federal University of São Carlos (DMed UFSCar), São Carlos, SP, Brazil.ORCID https://orcid.org/0000-0001-5741-0762

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

introductionIn Brazil, a country of continental dimensions, the lack of services in the different regions is a major barrier that prevents patients from accessing Pediatric Palliative Care (PPC). If accessing PPC is already challenging, end-of-life care for these patients may also be difficult. Therefore, this study is based on a recent mapping effort, aimed at reflecting on the end-of-life care for children in Palliative Care in Brazil.

methodDescriptive, cross-sectional study, and online survey research, based on a larger study of Palliative Care Network.

resultsThe final sample comprised 90 Pediatric Palliative Care services, which proved to be unevenly distributed across the country. Many services lack a minimum team, 40% face difficulties accessing opioids, and one-third do not provide bereavement care. DISCUSSION: There should be more services with better distribution across the country, and a minimum team should be required to provide adequate care for children and adolescents. Strategies to improve symptom control and grief support should be introduced.

conclusionsIt is concluded that continuing education and the inclusion of relevant topics in health courses are necessary. Additionally, health service managers must expand their focus to address these issues effectively.

Indexed as

AtlasEnd-of-lifeGeographic MappingMaternal-child Health servicesPalliative CarePalliative MedicinePediatrics

Identifiers

PMID39604648
PMCPMC11602889

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Registered trials

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.