Evidence map›Paper›PMID 39593035›Full record

ArticleBMC medical education2024

Genotes - a 'just-in-time' genomics education resource co-designed with clinicians.

Amy Frost, Aine Kelly, Michelle Bishop, Danielle Bogue, Ellen Copson, Lianne Gompertz, Eleanor Hay, Jude Hayward, Emile Hendriks, Terri McVeigh and 2 more

Abstract read
In one paragraph

Article in BMC medical education, 2024. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 3 papers, 1 of them a synthesis that pooled it.

0numbers the graph read from it
0cells of the map it votes in
3citing papers in PubMed, 1 pooled it
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

3 citing papers in PubMed, 1 synthesis or guideline pooled it.

  1. Pooled it
  2. Article
  3. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

12 authors.

Amy FrostGenomics Education Programme, NHS England, Birmingham, UK. Amy.Frost9@nhs.net.
Aine KellyGenomics Education Programme, NHS England, Birmingham, UK.
Michelle BishopWellcome Connecting Science, Wellcome Genome Campus, Cambridge, UK.
Danielle BogueGenomics Education Programme, NHS England, Birmingham, UK.
Ellen CopsonCancer Sciences Academic Unit, University of Southampton, Southampton, UK.
Lianne GompertzGenomics Education Programme, NHS England, Birmingham, UK.
Eleanor HayDepartment of Clinical Genetics, Great Ormond Street Hospital, London, UK.
Jude HaywardGenomics Education Programme, NHS England, Birmingham, UK.
Emile HendriksDepartment of Paediatrics, School of Clinical Medicine, University of Cambridge, Cambridge, UK.
Terri McVeighCancer Genetics Unit, Royal Marsden NHS Foundation Trust, London, UK.
Siobhan SimpsonGenomics Education Programme, NHS England, Birmingham, UK.
Kate Tatton-BrownGenomics Education Programme, NHS England, Birmingham, UK.

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

backgroundPowerful new genomic technologies are transforming the way healthcare is delivered, shaping medical practice across all specialties. In this rapidly changing landscape, there is an urgent need to equip the clinical workforce with knowledge and skills to navigate the new healthcare terrain. Co-design of healthcare resources with end users is increasingly gaining traction as a method of ensuring that educational content and delivery are tailored to users' needs, increasing likelihood of use and resulting in better outcomes for patients. Here we describe the co-design and ongoing co-creation of GeNotes - an NHS England National Genomics Education flagship online resource providing genomics education at the point of patient care.

methodsTo understand the barriers to implementation of genomic medicine and the training needs of the diverse NHS workforce, we adopted a co-design approach with clinicians from both primary and secondary care who are uniquely placed to understand the context in which they are working and identify their own training needs. Concept design, initial user research and subsequent 'alpha' and 'private beta' phase user research was conducted in a series of co-design iterations employing a mixed methodology integrating quantitative and qualitative data collection and analysis.

resultsUser evaluation data demonstrated excellent feedback across the tested domains (content, navigation, likelihood of use and recommendation to colleagues). We identified several key themes from user testing that shaped the resource's development.

conclusionsThe co-design approach to the development of this point-of-care genomics education resource for clinicians has allowed insight into the education needs, challenges and learning styles of end-users. The utility of this approach was supported by excellent user feedback across the tested domains, and we recommend it to others involved in developing healthcare resources in a fast-paced environment.

Indexed as

GenomicsEnglandHumansState MedicineCo-designEducationGenomic medicineJust-in-timeNHSPrimary careSecondary careTraining

Identifiers

PMID39593035
PMCPMC11600734

What OpenQuestion holds

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LicenceCC BY-NC-ND
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Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.