Evidence map›Paper›PMID 39576051›Full record

ArticleJournal of the American Geriatrics Society2025

Moving beyond tokenism: Sustaining engagement of persons living with dementia in identifying emergency research priorities.

Jacqueline Sandoval, Andrea Gilmore-Bykovskyi, Christopher R Carpenter, Manish N Shah, Jeffrey Dussetschleger, Scott Dresden, Michael Ellenbogen, Heidi Gil, Naveena Jaspal, Deborah Jobe and 3 more

Abstract read
In one paragraph

Article in Journal of the American Geriatrics Society, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 4 papers.

0numbers the graph read from it
0cells of the map it votes in
4citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

4 citing papers in PubMed.

  1. Involving People With Dementia in Research: Contributions, Barriers and Evaluation From a Meta-Synthesis and Qualitative Interview Study.Health expectations : an international journal of public participation in health care and health policy · 2026
    Article
  2. Article
  3. The Geriatric Emergency Care Applied Research Standardization Study (GEARSS): An Observational Study of Older Emergency Department Patients.Academic emergency medicine : official journal of the Society for Academic Emergency Medicine · 2026
    Observational
  4. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

13 authors.

Jacqueline SandovalYale School of Medicine, New Haven, Connecticut, USA.ORCID 0000-0002-5469-6272
Andrea Gilmore-BykovskyiUniversity of Wisconsin-Madison School of Medicine and Public Health, Madison, Wisconsin, USA.
Christopher R CarpenterMayo Clinic, Rochester, Minnesota, USA.ORCID 0000-0002-2603-7157
Manish N ShahUniversity of Wisconsin-Madison School of Medicine and Public Health, Madison, Wisconsin, USA.ORCID 0000-0001-6331-1074
Jeffrey DussetschlegerYale School of Medicine, New Haven, Connecticut, USA.
Scott DresdenNorthwestern Medicine Feinberg School of Medicine, Chicago, Illinois, USA.
Michael EllenbogenChesapeake City, Maryland, USA.
Heidi GilLiveWell, Plantsville, Connecticut, USA.
Naveena JaspalUniversity of Wisconsin-Madison, Madison, Wisconsin, USA.
Deborah JobeLake Saint Louis, Missouri, USA.
Allan VannCommack, New York, USA.
Teresa WebbPhoenix, Arizona, USA.
Ula HwangNew York University Grossman School of Medicine, New York, New York, USA.ORCID 0000-0002-3715-3073

Funding

Statistics CoreU19AG078105 · NIA · NEW YORK UNIVERSITY SCHOOL OF MEDICINE · PI MANISH N SHAH · 2023 to 2026
$58.3M
Geriatrics Emergency care Applied Research Network 2.1 - AdvanCing and Expanding Dementia care (GEAR 2.1 - ACED)R33AG069822 · NIA · YALE UNIVERSITY · PI Ula Y Hwang, MANISH N SHAH · 2023 to 2026
$5.3M
Growing the Geriatric Emergency care Applied Research (GEAR 1.1) network: Expanding and sustaining an emergency care aging study infrastructure.R33AG058926 · NIA · YALE UNIVERSITY · PI Ula Y Hwang, Daniella Meeker · 2020 to 2026
$4.6M
NIA NIH HHS 3R33AG069822-03S1NIA NIH HHS 4R33AG069822-03NIA NIH HHS R33 AG058926NIA NIH HHS R33AG058926NIA NIH HHS R33 AG069822NIA NIH HHS R33AG069822NIA NIH HHS U19 AG078105NIA NIH HHS U19AG078105
6 · The paper itself

Abstract

introductionThe Geriatric Emergency Care Applied Research Network 2.0-Advancing Dementia Care (GEAR 2.0-ADC) aims to advance research efforts to improve the emergency care of persons living with dementia (PLWDs).

objectiveTo support this objective, GEAR 2.0-ADC convened a virtual consensus conference to prioritize emergency care research opportunities for PLWDs inclusive of perspectives of PLWDs to ensure identification of research gaps in response to their experiences and priorities. Inclusion of PLWDs as research partners is increasingly recognized as a best practice, however, approaches to facilitating consensus participation are lacking.

methodsBest practices for supporting the engagement of PLWDs in a consensus conference, applied across its three phases (pre-conference, during the conference, and post-conference), include: establishing a learning environment focused on research priorities before the event, presenting information in ways that align with participants' learning preferences while accommodating cognitive impairments, and providing multiple opportunities and methods for gathering post-conference feedback from PLWDs.

resultsThese strategies were identified by PLWDs and care partners (CPs) through semi-structured interviews, who were involved in the convening process, aimed at exploring ways to enhance facilitation techniques for participants.

conclusionAdditionally, these summarized insights aim to encourage the use of community-engaged approaches in discussions and consensus-building around research priorities in emergency care, particularly for PLWDs and their CPs.

Indexed as

Biomedical ResearchDementiaEmergency Medical ServicesAgedHumanscare partnerscommunity‐engaged participatory research (CBPR)consensus conferencedementiaemergency medicinelived experiencesresearch priorities

Identifiers

PMID39576051
PMCPMC12095599

What OpenQuestion holds

Textmetadata
LicenceTDM
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.