Evidence map›Paper›PMID 39574104›Full record

ArticleBMC palliative care2024

Adapting and testing an eLearning resource for professionals to support families when a significant caregiver for children is dying with cancer.

Carla O'Neill, Jeffrey R Hanna, Sarah Sheehan, Tanya McCance, Amanda Drury, Cherith J Semple

Abstract read
In one paragraph

Article in BMC palliative care, 2024. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 3 papers, 1 of them a synthesis that pooled it.

0numbers the graph read from it
0cells of the map it votes in
3citing papers in PubMed, 1 pooled it
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

3 citing papers in PubMed, 1 synthesis or guideline pooled it.

  1. Pooled it
  2. Article
  3. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

6 authors.

Carla O'NeillSchool of Nursing, Midwifery and Health Systems, University College Dublin, Dublin, Ireland. carla.oneill@ucd.ie.
Jeffrey R HannaInstitute of Nursing and Health Research, Ulster University, Belfast, UK.
Sarah SheehanSchool of Nursing, Midwifery and Health Systems, University College Dublin, Dublin, Ireland.
Tanya McCanceInstitute of Nursing and Health Research, Ulster University, Belfast, UK.
Amanda DrurySchool of Nursing, Psychotherapy and Community Health, Dublin City University, Dublin, Ireland.
Cherith J SempleInstitute of Nursing and Health Research, Ulster University, Belfast, UK.

Funding

Higher Education Authority R23421
6 · The paper itself

Abstract

purposeHealth and social care professionals (professionals) often lack knowledge, skills and confidence to support adults at end of life with significant caregiving responsibilities for children, < 18. A recent systematic review highlighted a dearth of educational interventions (n = 2) to equip professionals to provide supportive care to families when a parent has cancer. Addressing an evident gap in education, this paper details the adaption and optimisation of a face-to-face educational intervention to an accessible eLearning resource.

methodsGuided by the 'Person-based Approach', a theory-driven and evidence-based face-to-face educational intervention was adapted and optimised as an eLearning resource. This incorporated current evidence, alongside insights from an expert group, learning technologists and research team, leading to the design of an eLearning prototype. This was optimised for acceptability and usability using think-aloud interviews with end-users (n = 13) and patient and public involvement (n = 4).

resultsAn iterative adaption and optimisation process enabled implementation of navigational improvements, changes to enhance clarity on language and appropriateness of images and interactive components. During optimisation, positive feedback was reported; especially regarding the 'look and feel' and on the educational videos and reflective exercises embedded throughout the eLearning resource.

conclusionThe systematic adaption and optimisation of this novel eLearning resource has aimed to promote relevance, appropriateness, and applicability of an accessible evidence-based and theory-driven training resource for professionals. It has the potential to promote family-centred supportive end of life cancer care, which ultimately can promote better bereavement outcomes. An evaluation of the intervention is required to explore impact on practice.

Indexed as

CaregiversNeoplasmsAdultChildFamilyFemaleHealth PersonnelHumansMaleTerminal CareAdultsCancerChildrenDigital healthEducational interventionEnd of lifeHealth care professionalsPerson-based approachSocial care professionalsSupportive care

Identifiers

PMID39574104
PMCPMC11580503

What OpenQuestion holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.