Evidence map›Paper›PMID 39567529›Full record

ReviewNature communications2024

Data sharing ethics toolkit: The Human Cell Atlas.

Emily Kirby, Alexander Bernier, Roderic Guigó, Barbara Wold, Fabiana Arzuaga, Mayumi Kusunose, Ma'n Zawati, Bartha M Knoppers

Abstract readReview
In one paragraph

Review in Nature communications, 2024. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 8 papers.

0numbers the graph read from it
0cells of the map it votes in
8citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

8 citing papers in PubMed.

  1. Review
  2. Are Different Populations Fairly Represented in Single-Cell Omic Atlases?bioRxiv : the preprint server for biology · 2026
    Article
  3. Review
  4. Article
  5. Review
  6. Review
  7. Review
  8. Review
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

8 authors.

Emily KirbyCentre of Genomics and Policy, School of Biomedical Sciences, Faculty of Medicine and Health Sciences, McGill University, 740 Dr. Penfield, Suite 5200, Montreal, QC, Canada. emily.kirby@mail.mcgill.ca.ORCID 0000-0002-9419-6600
Alexander BernierCentre of Genomics and Policy, School of Biomedical Sciences, Faculty of Medicine and Health Sciences, McGill University, 740 Dr. Penfield, Suite 5200, Montreal, QC, Canada.
Roderic GuigóBioinformatics and Genomics, Center for Genomic Regulation (CRG), The Barcelona Institute for Science and Technology (BIST), Dr. Aiguader 88, Barcelona, Catalonia, Spain.ORCID 0000-0002-5738-4477
Barbara WoldDivision of Biology and Biological Engineering, California Institute of Technology, Pasadena, CA, USA.ORCID 0000-0003-3235-8130
Fabiana ArzuagaInterministerial Comission on Advanced Therapies Ministry of Science, Technology and Innovation -Argentina Godoy Cruz 2320. 4th Floor, Ciudad Autónoma de, Buenos Aires, Argentina.
Mayumi KusunoseCenter for Integrative Medical Sciences, RIKEN. 1-7-22 Suehiro-cho, Tsurumi-ku, Yokohama City, Kanagawa, Japan.ORCID 0009-0003-6635-0185
Ma'n ZawatiCentre of Genomics and Policy, School of Biomedical Sciences, Faculty of Medicine and Health Sciences, McGill University, 740 Dr. Penfield, Suite 5200, Montreal, QC, Canada.ORCID 0000-0002-8905-6259
Bartha M KnoppersCentre of Genomics and Policy, School of Biomedical Sciences, Faculty of Medicine and Health Sciences, McGill University, 740 Dr. Penfield, Suite 5200, Montreal, QC, Canada.ORCID 0000-0001-7004-2722

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

Striving to build an exhaustive guidebook of the types and properties of human cells, the Human Cell Atlas' (HCA) success relies on the sampling of diverse populations, developmental stages, and tissue types. Its open science philosophy preconizes the rapid, seamless sharing of data - as openly as possible. In light of the scope and ambition of such an international initiative, the HCA Ethics Working Group (EWG) has been working to build a solid foundation to address the complexities of data collection and sharing as part of Atlas development. Indeed, a particular challenge of the HCA is the diversity of sampling scenarios (e.g., living participants, deceased donors, pediatric populations, culturally diverse backgrounds, tissues from various developmental stages, etc.), and associated ethical and legal norms, which vary across countries contributing to the effort. Hence, to the extent possible, the EWG set out to provide harmonised, international and interoperable policies and tools, to guide its research community. This paper provides a high-level overview of the types of challenges and approaches proposed by the EWG.

Indexed as

Information DisseminationHumans

Identifiers

PMID39567529
PMCPMC11579383

What OpenQuestion holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.