Evidence map›Paper›PMID 39566994›Full record

ArticleBMJ paediatrics open2024

Anxiety and care experiences in adolescents with chronic health conditions: an international, longitudinal study across the transfer of care.

Anna Alanen, Mira Kallio, Evelyn Culnane, Mari Koivisto, Miko Pasanen, Sanna Salanterä, Susan Sawyer, Silja Kosola

Registry-linked trialAbstract readMulticenter Study
PubMed Full text at PMC Publisher
In one paragraph

Article in BMJ paediatrics open, 2024. The graph could read no effect estimate from its abstract, so it casts no vote on the map. It is linked to trial NCT04631965 (Bridge), which is not on this map. Cited by 1 paper.

0numbers the graph read from it
0cells of the map it votes in
1citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

NCT04631965 unknown statusnot on this map

Bridge: an International Longitudinal Study of Healthcare Transition of Adolescents With Severe Chronic Health Conditions

TypeobservationalSponsorUniversity of HelsinkiRan2017 to 2023Enrolled503ConditionsTransition, Diabetes, Kidney Diseases, Liver DiseasesArmsTransition support service
3 · Its place in the literature

Who cites it

1 citing paper in PubMed.

  1. Observational
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

8 authors.

Anna AlanenNursing Science, University of Turku, Faculty of Medicine, Turku, 20014, Finland anmtor@utu.fi.ORCID 0000-0001-8210-2358
Mira KallioDepartment of Paediatrics, University of Helsinki, Faculty of Medicine, Helsinki, Finland.ORCID 0000-0003-0188-5341
Evelyn CulnaneThe Royal Children's Hospital Melbourne, Parkville, Victoria, Australia.
Mari KoivistoDepartment of Biostatistics, University of Turku, Turku, Finland.
Miko PasanenNursing Science, University of Turku, Faculty of Medicine, Turku, 20014, Finland.
Sanna SalanteräNursing Science, University of Turku, Faculty of Medicine, Turku, 20014, Finland.
Susan SawyerDepartent of Paediatrics, University of Melbourne VCCC, Parkville, Victoria, Australia.
Silja KosolaHelsinki University Central Hospital, Helsinki, Uusimaa, Finland.

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

objectivesTo evaluate changes in anxiety, care experiences and condition impact among adolescents with chronic health conditions in two countries as they transfer to adult healthcare and to assess factors influencing anxiety levels.

designA longitudinal international study. Data was collected by questionnaires before (2017-2021) and a year after (2018-2022) transfer of care.

settingTwo specialist hospitals in Finland and Australia.

participants440 adolescents with chronic health conditions were recruited from Finland (FIN n=237; mean age 17.2) and Australia (AUS n=203; mean age 18.3) with the answering percentage FIN 68.8% and AUS 55.2% of the first time point.

main outcome measuresThe validated State-Trait Anxiety Inventory short form (STAI) was used to measure care-related anxiety. Care experiences were measured using eight questions from the Adolescent-Friendly Hospital Survey. Self-reported condition impact was measured by a Visual Analogue Scale. Care experiences, condition impact, country and age were included in regression analyses as predictors of care-related anxiety.

resultsAt baseline, there were few clinically meaningful differences between participants at the two sites. Adolescents reported positive care experiences both before and after the transfer of care. In regression analyses after the transfer of care, adolescents with lower condition impact experienced lower anxiety levels than adolescents with higher condition impact (beta -9.00, 95% CI -13.85 to 4.16, p<0.001). After the transfer of care, adolescents who reported negative care experiences also reported higher anxiety (median STAI score 40.0 (IQR 30.0-50.0) versus 33.3 (IQR 23.3-41.6), p<0.001).

conclusionAcross two different healthcare systems, most adolescents with chronic health conditions reported low anxiety and positive care experiences before and after transfer to adult healthcare. Beyond efforts to generally enhance positive care experiences, focusing on adolescents with higher-impact chronic conditions may reduce disease-related anxiety. TRIAL REGISTRATION NUMBER: ClinicalTrials.org NCT04631965, submitted 21 October 2020.

Indexed as

AnxietyAdolescentAustraliaChronic DiseaseFemaleFinlandHumansLongitudinal StudiesMaleSurveys and QuestionnairesTransition to Adult CareYoung AdultAdolescent HealthChild HealthData CollectionHealth services researchNoncommunicable Diseases

Identifiers

PMID39566994
PMCPMC11580251

What OpenQuestion holds

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Registered trials

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.