Evidence map›Paper›PMID 39566938›Full record

ArticleBMJ open2024

Chronic illness and financial burden in Switzerland (FINK): a protocol for a mixed methods research project.

Karin Ribi, Andrea Schöpf-Lazzarino, Rosa M S Visscher, Josip Jurisic, Elena Alder, Bettina Schwind

Abstract read
In one paragraph

Article in BMJ open, 2024. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 1 paper.

0numbers the graph read from it
0cells of the map it votes in
1citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

1 citing paper in PubMed.

  1. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

6 authors.

Karin RibiCareum School of Health, part of the Kalaidos University of Applied Sciences, Zurich, Switzerland karin.ribi@careum-hochschule.ch.ORCID http://orcid.org/0000-0003-4724-1197
Andrea Schöpf-LazzarinoCareum School of Health, part of the Kalaidos University of Applied Sciences, Zurich, Switzerland.ORCID http://orcid.org/0000-0002-4705-2938
Rosa M S VisscherCareum School of Health, part of the Kalaidos University of Applied Sciences, Zurich, Switzerland.ORCID http://orcid.org/0000-0003-2817-9359
Josip JurisicCareum School of Health, part of the Kalaidos University of Applied Sciences, Zurich, Switzerland.ORCID http://orcid.org/0009-0002-6154-3861
Elena AlderCareum School of Health, part of the Kalaidos University of Applied Sciences, Zurich, Switzerland.ORCID http://orcid.org/0000-0002-8656-9825
Bettina SchwindCareum School of Health, part of the Kalaidos University of Applied Sciences, Zurich, Switzerland.ORCID http://orcid.org/0000-0002-9639-7780

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

introductionPeople with cancer and other chronic illnesses, their families and caregivers report financial burden as a problem that affects multiple aspects of daily life. While cancer research has coined the term 'financial toxicity' to describe the financial consequences, the understanding, development and operationalisation of the concept of financial burden are still incomplete, particularly regarding subjective financial burden and its relationship with well-being. The overall aim is to investigate financial burden and its implications for the well-being of people living with chronic illness, their families, and caregivers in Switzerland. METHODS AND ANALYSIS: Transdisciplinary discussion groups and a participatory action design element frame: (1) a conceptualisation using a hybrid concept analysis approach and (2) an assessment of financial burden of chronic illness in relation to well-being. The hybrid concept analysis combines the results of a scoping review with a secondary analysis of existing interviews using computational linguistics and qualitative analysis. The assessment phase will investigate the extent and nature of financial burden through a nationwide survey. Results from mobile diaries/interviews will contribute to both-the conceptualisation and assessment phases. ETHICS AND DISSEMINATION: The Ethics Committee of the Canton Zurich, Switzerland, did not consider the research project to fall under the Swiss Law on Human Subjects research and issued a waiver (Req-2O23-01496). The project respects all the rules and regulations in the Swiss Federal Act on Data Protection and those by the Swiss Federal Official Responsible for Data Protection and Transparency. Results will be disseminated through presentations at conferences and publications in peer-reviewed journals and through the established multi-stakeholder network.

Indexed as

CaregiversCost of IllnessResearch DesignChronic DiseaseHumansNeoplasmsSwitzerlandCaregiver BurdenChronic DiseaseQuality of Life

Identifiers

PMID39566938
PMCPMC11580282

What OpenQuestion holds

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Registered trials

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.