Evidence map›Paper›PMID 39557385›Full record

ArticleThe Journal of pediatrics2025

Early Young Adult Death Underscores the Need for Adolescent and Young Adult Transition Programs in Neurofibromatosis Type 1.

Tina Tarnawsky, Inez Y Oh, Ethan Hillis, Aditi Gupta, David H Gutmann

Abstract read
In one paragraph

Article in The Journal of pediatrics, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 1 paper.

0numbers the graph read from it
0cells of the map it votes in
1citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

1 citing paper in PubMed.

  1. Review
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

5 authors.

Tina TarnawskyDepartment of Neurology, Washington University School of Medicine, St. Louis, MO.
Inez Y OhInstitute for Informatics, Data Science, and Biostatistics, Washington University School of Medicine, St. Louis, MO.
Ethan HillisInstitute for Informatics, Data Science, and Biostatistics, Washington University School of Medicine, St. Louis, MO.
Aditi GuptaInstitute for Informatics, Data Science, and Biostatistics, Washington University School of Medicine, St. Louis, MO.
David H GutmannDepartment of Neurology, Washington University School of Medicine, St. Louis, MO. Electronic address: gutmannd@wustl.edu.

Funding

Personalized risk assessment in Neurofibromatosis Type 1R01NS131112 · NINDS · WASHINGTON UNIVERSITY · PI Aditi Gupta, PHILIP R.O. PAYNE · 2023 to 2026
$2.2M
NINDS NIH HHS R01 NS131112
6 · The paper itself

Abstract

There are few centers with combined pediatric and adult neurofibromatosis 1 practices and transition of care programming. Using an electronic health records-based approach, we found an early death peak in the fourth decade of life largely owing to malignancy, underscoring the need for integrated neurological training and practice across the lifespan.

Indexed as

Neurofibromatosis 1Transition to Adult CareAdolescentAdultChildElectronic Health RecordsFemaleHumansMaleYoung Adult

Identifiers

PMID39557385
PMCPMC12828893

What OpenQuestion holds

Textmetadata
LicenceTDM
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.