Evidence map›Paper›PMID 39555897›Full record

ArticleSociology of health & illness2025

Between epistemic injustice and therapeutic jurisprudence: Coronial processes involving families of autistic people, people with learning disabilities and/or mental ill health.

Sara Ryan, Francesca Ribenfors, Magdalena Mikulak, Deborah Coles

Abstract read
In one paragraph

Article in Sociology of health & illness, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 2 papers.

0numbers the graph read from it
0cells of the map it votes in
2citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

2 citing papers in PubMed.

  1. Article
  2. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

4 authors.

Sara RyanDepartment of Social Care and Social Work, Manchester Metropolitan University, Manchester, UK.ORCID 0000-0002-7406-1610
Francesca RibenforsDepartment of Social Care and Social Work, Manchester Metropolitan University, Manchester, UK.
Magdalena MikulakFaculty of Health and Medicine, Lancaster University, Lancaster, UK.
Deborah ColesINQUEST, London, UK.

Funding

Sainsbury Family Charitable Trusts TGT463
6 · The paper itself

Abstract

Understanding how and why someone dies unexpectedly is key to bereaved family members. The coronial process in England investigates instances where the cause of death is unknown, violent or unnatural and/or occurred in state detention. Families are held to be at the centre of this process and the coroner's role has extended to concern about therapeutic jurisprudence, that is, how legal processes can minimise negative consequences for participants without jeopardising due process. Therapeutic jurisprudence involves unresolved tensions, however, and an epistemic power imbalance. Within the inquest, knowledge is produced, evaluated and contested, and epistemic privilege may be unevenly distributed. The inquest is also a process that, as we demonstrate, requires epistemic courage and resistance on the part of families. Families with relatives who are autistic, have learning disabilities and/or mental ill health can experience epistemic and structural injustice before an unexpected death which makes the distinctiveness of their experiences important to understand. Here, we report on a qualitative interview project which focused on how bereaved families experience the coronial process after their relative died in receipt of health and/or social care support.

Indexed as

Autistic DisorderBereavementCoroners and Medical ExaminersFamilyLearning DisabilitiesMental DisordersAdultCause of DeathEnglandFemaleHumansInterviews as TopicMaleQualitative Researchautismcoronial processesdisabilityepistemic injusticeinquestslearning disabilitytherapeutic jurisprudence

Identifiers

PMID39555897
PMCPMC11849770

What OpenQuestion holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.