Evidence map›Paper›PMID 39548481›Full record

ArticleBMC health services research2024

Health service provider views on measuring patient involvement in healthcare: an interview study with researchers, clinicians, service managers, and policymakers.

Bente Skovsby Toft, Trine Ellegaard, Berit Kjærside Nielsen, Camilla Blach Rossen, Jens Thusgaard Hørlück, Mette Spliid Ludvigsen, Hilary Louise Bekker, Lotte Ørneborg Rodkjær

Abstract read
In one paragraph

Article in BMC health services research, 2024. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 2 papers.

0numbers the graph read from it
0cells of the map it votes in
2citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

2 citing papers in PubMed.

  1. Moving forward, leaving the patients behind? A multilevel assessment framework for evaluating patient-centred, integrated care quality.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2026
    Review
  2. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

8 authors.

Bente Skovsby ToftResearch Centre for Patient Involvement, Aarhus University Hospital, Aarhus, Denmark. betoft@rm.dk.
Trine EllegaardPsychosis Research Unit, Aarhus University Hospital, Psychiatry, Aarhus, Denmark.
Berit Kjærside NielsenDEFACTUM, Social & Health Services and Labour Market, Central Denmark Region, Aarhus, Denmark.
Camilla Blach RossenUniversity Clinic for Interdisciplinary Orthopaedic Pathways, Silkeborg Regional Hospital, Silkeborg, Denmark.
Jens Thusgaard HørlückDEFACTUM, Social & Health Services and Labour Market, Central Denmark Region, Aarhus, Denmark.
Mette Spliid LudvigsenDepartment of Clinical Medicine, Randers Regional Hospital, Aarhus University, Aarhus, Denmark.
Hilary Louise BekkerResearch Centre for Patient Involvement, Aarhus University Hospital, Aarhus, Denmark.
Lotte Ørneborg RodkjærResearch Centre for Patient Involvement, Aarhus University Hospital, Aarhus, Denmark.

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

backgroundThere are several strategies used to assess involvement in their healthcare across service providers. However, there is no consensus on the most appropriate measurement tool to use when evaluating patient involvement initiatives. This qualitative study aimed to explore the perspectives of stakeholders from micro, meso, and macro levels within the Danish healthcare system on measuring patient involvement in their healthcare.

methodsThis descriptive, explorative study employed semi-structured interviews with open-ended questions to elicit participants' views and experiences of patient involvement and measurement tools. A purposeful sample of participants was identified, to include decision makers, researchers, and health professionals (n = 20) with experiences of measuring patient involvement in healthcare at micro, meso, and macro levels across Danish organizations. Data underwent reflexive thematic analysis.

resultsThree main themes were identified: 1) Determining the purpose of patient involvement practices and measurement alignment; 2) Reflecting on the qualities, fit, and usefulness of measures; 3) Recognizing conflicting stakeholder paradigms. Despite the interest in and positive attitudes toward patient involvement innovations, views on the meaning and value of evaluating involvement varied; in part, this was attributable to challenges in selecting criteria, methods, and measures for evaluation.

conclusionThe findings indicate the need to integrate the perspectives of all key stakeholders in designing the evaluation of patient involvement initiatives. The application of a multiple stakeholder approach and co-production of a multidimensional evaluation may provide some common ground for selecting evaluation criteria and measurement tools in the healthcare setting.

trial registrationDanish Data Protection Agency (1-16-02-400-21) 15 October 2021.

Indexed as

Interviews as TopicPatient ParticipationQualitative ResearchAdministrative PersonnelAdultAttitude of Health PersonnelDenmarkFemaleHealth PersonnelHumansMaleMiddle AgedResearch PersonnelClinical practiceEvaluationHealthcare servicesHealthcare systemHealth serviceMeasurement toolsMultiple stakeholdersPatient involvementQualitative research

Identifiers

PMID39548481
PMCPMC11568535

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LicenceCC BY-NC-ND
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Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.