Evidence map›Paper›PMID 39546218›Full record

ArticleJournal of religion and health2025

Spirituality, Spiritual Distress and Experiences of Joy, Meaning and Growth Among Parkinson's Disease Caregivers in the United States.

Sandhya Seshadri, Angela Contento, Sue E Ouellette, Kei Sugiura, Benzi M Kluger

Erratum issuedAbstract read
PubMed Full text at PMC Publisher
In one paragraph

Article in Journal of religion and health, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. An erratum has been issued. Cited by 1 paper.

0numbers the graph read from it
0cells of the map it votes in
1citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

1 citing paper in PubMed.

  1. Article
4 · The record

Corrections and comments

5 · Who and what money

Authors and funding

5 authors.

Sandhya SeshadriDepartment of Neurology, University of Rochester, 265 Crittenden Boulevard, CU 420694, Rochester, NY, 14642, USA. Sandhya_seshadri@urmc.rochester.edu.ORCID http://orcid.org/0000-0002-0809-6903
Angela ContentoWarner School of Education and Human Development, University of Rochester, Rochester, NY, USA.
Sue E OuelletteDepartment of Neurology, University of Rochester, 265 Crittenden Boulevard, CU 420694, Rochester, NY, 14642, USA.
Kei SugiuraDepartment of Neurology, University of Rochester, 265 Crittenden Boulevard, CU 420694, Rochester, NY, 14642, USA.
Benzi M KlugerDepartment of Neurology, University of Rochester, 265 Crittenden Boulevard, CU 420694, Rochester, NY, 14642, USA.

Funding

Advancing Palliative Care for Older Adults Affected by Neurodegenerative Disease: Parkinsons disease, Alzheimers disease and Related DementiasK02AG062745 · NIA · UNIVERSITY OF ROCHESTER · PI KLUGER, BENZI M · 2020 to 2024
$711k
National Institute of Aging K02AG062745NIA NIH HHS K02 AG062745
6 · The paper itself

Abstract

Caregiving challenges of Parkinson's disease can result in loss of faith, meaning, and spiritual distress. The purpose of this study is to describe Parkinson's disease caregivers' perceptions and experiences related to spiritual distress, sources of spiritual and religious support, acts, and experiences of growth, and finding meaning and joy in the midst of spiritual distress. We conducted semi-structured interviews with caregivers of persons with Parkinson's disease (n = 16) and identified five themes: (a) Bearing witness to suffering underlies spiritual distress; (b) Prayers are pleas for "soul help"; (c) Spiritual guidance and support are important; (d) Faith and community are sources of spiritual support; and (e) Joy, meaning, and growth help to transcend spiritual distress. Interventions that target sources of spiritual distress and joy are needed.

Indexed as

CaregiversHappinessParkinson DiseasePsychological DistressSpiritualityStress, PsychologicalAdaptation, PsychologicalAdultAgedAged, 80 and overFemaleHumansInterviews as TopicMaleMiddle AgedQualitative ResearchParkinson’s disease caregiversQualitative researchSpiritual distressSpiritual growthSpirituality

Identifiers

PMID39546218
PMCPMC12078626

What OpenQuestion holds

Textmetadata
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Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.