ArticleJournal of patient-reported outcomes2024
How patient-reported outcomes and experience measures (PROMs and PREMs) are implemented in healthcare professional and patient organizations? An environmental scan.
Article in Journal of patient-reported outcomes, 2024. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 25 papers, 1 of them a synthesis that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
25 citing papers in PubMed, 1 synthesis or guideline pooled it.
- Barriers and facilitators for implementing patient-reported outcome measures in oncology practices: an umbrella review.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2026Pooled it
- The impact of intermittent fasting during weight reduction in people living with type 2 diabetes mellitus: a randomized clinical trial.European journal of clinical nutrition · 2026Trial
- Patient-Reported-Outcome-Measures (PROMs) After Gastrointestinal Endoscopic Resections.United European gastroenterology journal · 2026Trial
- Analysis of Nursing Service Quality Gaps and Improvement Strategies in VIP General Wards Based on Patient-Reported Outcomes.Journal of evaluation in clinical practice · 2026Article
- Patient-reported outcomes and experience measures in clinical trials of critically ill adults with sepsis: a scoping review.Annals of the American Thoracic Society · 2026Article
- [Nurses' perceptions of the integration of patient-reported experience measures and patient-reported outcome measures for care improvement: A multicenter qualitative study].Anales del sistema sanitario de Navarra · 2026Article
- How Context Shapes Person-Centred Fundamental Care Through Nurse-Patient Relationships: Validation of the FoC Intelligence Modelling Tool and Predictive Pathway Analysis.Journal of advanced nursing · 2026Article
- Psychometric properties and constructs of Patient Reported Experience Measures (PREMs) in primary care: a scoping review.BMC primary care · 2026Article
- Healthcare Quality Systems: International Frameworks, Evaluation and Improvement Strategies.Healthcare (Basel, Switzerland) · 2026Review
- A scoping review of palliative care assessment tools.BMC palliative care · 2026Article
- Psychometric Validation of a Short-Form Spanish Low Vision Quality of Life Questionnaire (SF-SLVQOL) Using Rasch Analysis: From 25 to 6 Items.Ophthalmic & physiological optics : the journal of the British College of Ophthalmic Opticians (Optometrists) · 2026Article
- Development and Validation of a Culturally Adapted Patient-Reported Experience Measure for Diabetes Care in Thailand: Mixed-Methods Study.Health expectations : an international journal of public participation in health care and health policy · 2026Article
- Co-Designing and Evaluating a Multimodal Digital Application to Enable People With Dementia to Self-Report Quality of Life Patient-Reported Outcome Measures: Co-Design Study and Summative Evaluation.Journal of participatory medicine · 2026Article
- Advancing the Implementation of Patient-Centered Outcomes in Rehabilitation Learning Health Systems: Insights From the 2024 LeaRRn Summit.Archives of physical medicine and rehabilitation · 2026Article
- A repository of Singapore validated PROMS: a scoping review.Journal of patient-reported outcomes · 2026Article
- Patient-reported outcome and experience measures in primary care: a scoping review of systematic collection and use.BMC health services research · 2026Article
- Patient- and caregiver-reported outcome and experience measures for evaluating serious illness communication: An environmental scan.Palliative care and social practice · 2026Review
- Learning Health Systems Symposium: Charting the Future of Saskatchewan Healthcare.Learning health systems · 2026Article
- Progress in Glaucoma Management in the Era of Value-Based Healthcare.Journal of clinical medicine · 2025Article
- Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
20 authors.
Funding
Abstract
backgroundPatient-reported outcome measures (PROMs) and patient-reported experience measures (PREMs) are becoming essential parts of a learning health system, and using these measures is a promising approach for value-based healthcare. However, evidence regarding healthcare professional and patient organizations' knowledge, use and perception of PROMs and PREMs is lacking.
objectivesThe objectives of the study were to: 1- Describe the current knowledge and use of PROMs and PREMs by healthcare professional and patient organizations, 2- Describe the determinants of PROMs and PREMs implementation according to healthcare professional and patient organizations.
methodsWe conducted an environmental scan using semi-structured interviews with representatives from healthcare professional and patient organizations. Interviews were recorded and live coded based on the Franklin framework. We used inductive and deductive thematic analysis to extract information about the main themes addressed during the interview (awareness of PROMs and PREMs, examples of implementation and use of PROMs and PREMs, tools used, vision for future implementation, barriers and facilitators to implementation and the best way to collect PROMs and PREMs data).
results63% of healthcare professional organizations (n = 19) and 41% of patient organizations (n = 9) that were contacted agreed to have a representative interviewed. The representatives from both the healthcare professional and patient organizations acknowledged the importance of assessing patients' experience and outcomes. However, they considered the implementation of PROMs and PREMs tools to be scarce within their organizations, in clinical practice and in the education system. Patient organizations were worried that overuse of PROMs and PREMs could lead to depersonalization of practice. Barriers to implementing PROMs and PREMs included lack of awareness of tools, resistance to change and lack of motivation to complete or explain the questionnaire. Barriers also included factors such as lack of financial, technological and human resources and issues with integration of data and inconsistency of digital platforms.
conclusionsThis environmental scan revealed a lack of awareness of tools by healthcare professional and patient organizations' representatives and limited implementation. Adequate training, technological integration, and demonstration of PROMs and PREMs benefits to foster broader adoption in clinical and organizational settings is dearly needed. Addressing these challenges is essential for enhancing value-based care.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.