Evidence map›Paper›PMID 39545358›Full record

ArticleJournal of the American Medical Informatics Association : JAMIA2025

Research for all: building a diverse researcher community for the All of Us Research Program.

Rubin Baskir, Minnkyong Lee, Sydney J McMaster, Jessica Lee, Faith Blackburne-Proctor, Romuladus Azuine, Nakia Mack, Sheri D Schully, Martin Mendoza, Janeth Sanchez and 37 more

Abstract read
In one paragraph

Article in Journal of the American Medical Informatics Association : JAMIA, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 9 papers.

0numbers the graph read from it
0cells of the map it votes in
9citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

9 citing papers in PubMed.

  1. Fostering collaboration through learning communities: a case report on engaging withJournal of the Medical Library Association : JMLA · 2026
    Article
  2. Article
  3. Article
  4. Population Prevalence of the Major Thyroid Cancer-Associated Syndromes.The Journal of clinical endocrinology and metabolism · 2025
    Article
  5. Article
  6. Can classical statistics and deep learning converge on explainable, causally driven target discovery?DNA research : an international journal for rapid publication of reports on genes and genomes · 2025
    Review
  7. Article
  8. Article
  9. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

47 authors.

Rubin BaskirAll of Us Research Program, National Institutes of Health, Bethesda, MD 20817, United States.
Minnkyong LeeAll of Us Research Program, National Institutes of Health, Bethesda, MD 20817, United States.
Sydney J McMasterAll of Us Research Program, National Institutes of Health, Bethesda, MD 20817, United States.
Jessica LeeAll of Us Research Program, National Institutes of Health, Bethesda, MD 20817, United States.
Faith Blackburne-ProctorAll of Us Research Program, National Institutes of Health, Bethesda, MD 20817, United States.
Romuladus AzuineAll of Us Research Program, National Institutes of Health, Bethesda, MD 20817, United States.
Nakia MackAll of Us Research Program, National Institutes of Health, Bethesda, MD 20817, United States.
Sheri D SchullyAll of Us Research Program, National Institutes of Health, Bethesda, MD 20817, United States.
Martin MendozaAll of Us Research Program, National Institutes of Health, Bethesda, MD 20817, United States.
Janeth SanchezAll of Us Research Program, National Institutes of Health, Bethesda, MD 20817, United States.
Yong CrosbyAll of Us Research Program, National Institutes of Health, Bethesda, MD 20817, United States.
Erica ZumbaAll of Us Research Program, National Institutes of Health, Bethesda, MD 20817, United States.
Michael HahnAll of Us Research Program, National Institutes of Health, Bethesda, MD 20817, United States.
Naomi AspaasAll of Us Research Program, National Institutes of Health, Bethesda, MD 20817, United States.
Ahmed ElmiAll of Us Research Program, National Institutes of Health, Bethesda, MD 20817, United States.
Shanté AlertéNational Institute on Aging, National Institutes of Health, Bethesda, MD 20892, United States.
Elizabeth StewartData and Research Center, Vanderbilt University Medical Center, Nashville, TN 37232, United States.
Danielle WilfongData and Research Center, Vanderbilt University Medical Center, Nashville, TN 37232, United States.
Meag DohertyAll of Us Research Program, National Institutes of Health, Bethesda, MD 20817, United States.
Margaret M FarrellAll of Us Research Program, National Institutes of Health, Bethesda, MD 20817, United States.
Grace B HébertAll of Us Research Program, National Institutes of Health, Bethesda, MD 20817, United States.
Sula HoodRTI International, Research Triangle Park, NC 27709, United States.
Cheryl M ThomasDelta Research and Educational Foundation, Washington, DC 20009, United States.
Debra D MurrayDepartment of Molecular and Human Genetics, Baylor College of Medicine, Houston, TX 77030, United States.
Brendan LeeDepartment of Molecular and Human Genetics, Baylor College of Medicine, Houston, TX 77030, United States.
Louisa A StarkGenetic Science Learning Center, University of Utah, Salt Lake City, UT 84112, United States.ORCID 0000-0002-2978-7279
Megan A LewisRTI International, Research Triangle Park, NC 27709, United States.
Jen D UhrigRTI International, Research Triangle Park, NC 27709, United States.
Laura R BartlettNational Library of Medicine, Washington, DC 20894, United States.
Edgar Gil RicoNational Alliance for Hispanic Health, Washington, DC 20036, United States.
Adolph FalcónNational Alliance for Hispanic Health, Washington, DC 20036, United States.
Elizabeth CohnFeinstein Institutes for Medical Research, Manhasset, NY 11030, United States.
Mitchell R LunnDepartment of Nephrology, Stanford University School of Medicine, Stanford, CA 94305, United States.
Juno Obedin-MaliverDepartment of Obstetrics and Gynecology, Stanford University School of Medicine, Stanford, CA 94305, United States.
Linda CottlerDepartment of Epidemiology, University of Florida, Gainesville, FL 32611, United States.
Milton EderDepartment of Family Medicine and Community Health, University of Minnesota, Minneapolis, MN 55455, United States.
Fornessa T RandalAsian Health Coalition, Chicago, IL 60605, United States.
Jason KarnesDepartment of Pharmacy Practice and Science, University of Arizona, Tuscon, AZ 85721, United States.
KiTani LemieuxDivision of Basic Pharmaceutical Sciences, Xavier University of Louisiana, LA 70125, United States.
Nelson LemieuxSeven Star Academy, Inc., New Orleans, LA 70114, United States.
Nelson LemieuxSeven Star Academy, Inc., New Orleans, LA 70114, United States.
Lilanta BradleyDepartment Community Medicine and Population Health, University of Alabama, Tuscaloosa, AL 35487, United States.
Ronnie TeppPyxis Partners, Washington, DC 20005, United States.
Meredith WilsonPyxis Partners, Washington, DC 20005, United States.
Monica RodriguezPyxis Partners, Washington, DC 20005, United States.ORCID 0009-0001-5813-4365
Chris LuntAll of Us Research Program, National Institutes of Health, Bethesda, MD 20817, United States.
Karriem WatsonAll of Us Research Program, National Institutes of Health, Bethesda, MD 20817, United States.

Funding

Technology to Empower Changes in Health (TECH) Network Participant Technologies CenterU24OD023176 · OD · SCRIPPS RESEARCH INSTITUTE, THE · PI TOPOL, ERIC JEFFREY · 2016 to 2022
$204.7M
Precision Medicine Initiative Cohort Program BiobankU24OD023121 · OD · MAYO CLINIC ROCHESTER · PI CEKANOVA, MARIA, CICEK, MINE · 2016 to 2024
$185.5M
Adaptive Platform for Personalized EngagementU24OD023163 · OD · VIGNET, INC. · PI JAIN, PRADUMAN · 2017 to 2020
$102.6M
All of Us Wisconsin OT2OD026555 · OD · MARSHFIELD CLINIC RESEARCH FOUNDATION · PI BURNSIDE, ELIZABETH S, EDWARDS, DOROTHY FARRAR · 2018 to 2023
$57.2M
Engaging All of Us for Effective Precision MedicineOT2OD028414 · OD · UNIVERSITY OF UTAH · PI STARK, LOUISA A · 2019 to 2023
$9.4M
ACCISIS-ChicagoUH3CA233229 · NCI · UNIVERSITY OF CHICAGO · PI KIM, KAREN E, POLITE, BLASE N. · 2019 to 2022
$5.2M
All of Us Consortium of CTSA Community Engagement ProgramsOT2OD031919 · OD · UNIVERSITY OF FLORIDA · PI COTTLER, LINDA B., EDER, MILTON · 2022 to 2025
$5.0M
Precision Medicine for All of Us Researchers Collective Medicine de Precision: Colectivo de Investigadores Salud para TodosOT2OD036485 · OD · UNIVERSITY OF ARIZONA · PI KARNES, JASON HANSEN, MORENO, FRANCISCO A · 2023 to 2025
$2.6M
Xavier University of Louisiana Reaches the Underrepresented in Biomedical Research (XULA RUBR)OT2OD038383 · OD · XAVIER UNIVERSITY OF LOUISIANA · PI JONES, SHANTOYIA S, LEMIEUX, KITANI · 2024 to 2025
$883k
Chicago South Side Cancer Disparities Intiative (1 of 2)P20CA165582 · NCI · UNIVERSITY OF CHICAGO · PI KIM, KAREN E · 2012 to 2015
$862k
Chicago South Side Cancer Disparities Initiative ( 2 of 2)P20CA165587 · NCI · CHICAGO STATE UNIVERSITY · PI BRITT, THOMAS · 2012 to 2015
$812k
ACCISIS-ChicagoUG3CA233229 · NCI · UNIVERSITY OF CHICAGO · PI KIM, KAREN E, POLITE, BLASE N. · 2018 to 2018
$810k
Communications and Engagement 3 OT2OD023205Data and Research Center 5 U2COD023196Federally Qualified Health Centers 263201600085UNCI NIH HHS P20 CA165582NCI NIH HHS P20 CA165587NCI NIH HHS UG3 CA233229NCI NIH HHS UH3 CA233229NHLBI NIH HHS R21 HL172036NIH HHS 1 OT2OD026548NIH HHS 1 OT2OD026550NIH HHS 1OT2OD026551NIH HHS 1 OT2OD026552NIH HHS 1 OT2OD026553NIH HHS 1 OT2OD026554NIH HHS 1 OT2OD026556NIH HHS 1 OT2OD026557NIH HHS OT2 OD026555NIH HHS OT2 OD028414NIH HHS OT2 OD031919NIH HHS OT2 OD036485NIH HHS OT2 OD038383NIH HHS U24 OD023121NIH HHS U24 OD023163NIH HHS U24 OD023176NIMHD NIH HHS L60 MD001364NLM NIH HHSOffice of the Director: Regional Medical Centers 1 OT2OD026549Participant Technology Systems Center 1U24 OD023163The Participant Center U24OD023176
6 · The paper itself

Abstract

objectivesThe NIH All of Us Research Program (All of Us) is engaging a diverse community of more than 10 000 registered researchers using a robust engagement ecosystem model. We describe strategies used to build an ecosystem that attracts and supports a diverse and inclusive researcher community to use the All of Us dataset and provide metrics on All of Us researcher usage growth. MATERIALS AND

methodsResearcher audiences and diversity categories were defined to guide a strategy. A researcher engagement strategy was codeveloped with program partners to support a researcher engagement ecosystem. An adapted ecological model guided the ecosystem to address multiple levels of influence to support All of Us data use. Statistics from the All of Us Researcher Workbench demographic survey describe trends in researchers' and institutional use of the Workbench and publication numbers.

resultsFrom 2022 to 2024, some 13 partner organizations and their subawardees conducted outreach, built capacity, or supported researchers and institutions in using the data. Trends indicate that Workbench registrations and use have increased over time, including among researchers underrepresented in the biomedical workforce. Data Use and Registration Agreements from minority-serving institutions also increased. DISCUSSION: All of Us built a diverse, inclusive, and growing research community via intentional engagement with researchers and via partnerships to address systemic data access issues. Future programs will provide additional support to researchers and institutions to ameliorate All of Us data use challenges.

conclusionThe approach described helps address structural inequities in the biomedical research field to advance health equity.

Indexed as

Research PersonnelBiomedical ResearchCultural DiversityHumansNational Institutes of Health (U.S.)United Statesbiomedical researchcapacity buildingresearch personnelstakeholder engagementtraining programs

Identifiers

PMID39545358
PMCPMC11648709

What OpenQuestion holds

Textmetadata
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.