ArticleBMC medical ethics2024
Exploring the ethical decision-making experience of caregivers of end stage cancer patients in Iran: a phenomenological study.
Article in BMC medical ethics, 2024. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 5 papers, 1 of them a synthesis that pooled it.
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Who cites it
5 citing papers in PubMed, 1 synthesis or guideline pooled it.
- Why Do Cancer Patients Decide to Withdraw Their Treatment? A Systematic Review and Meta-Synthesis.Cancer medicine · 2026Pooled it
- Moral Distress Among Family Caregivers: A Concept Analysis.Journal of advanced nursing · 2026Review
- Ethical challenges in end-of-life cancer care: a qualitative study among health-care providers in Iran.BMC palliative care · 2026Article
- Palliative treatment and social support needs in patients with liver, gallbladder, and pancreatic tumors.World journal of psychiatry · 2025Article
- Cultural adaptation of ENABLE (Educate, Nurture, Advise, Before Life Ends) an early palliative care model for Iranian patients with heart failure and their caregivers: a qualitative study protocol.Archives of public health = Archives belges de sante publique · 2025Article
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Authors and funding
6 authors.
Funding
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Abstract
backgroundEthical decision making is a complex issue because it strongly depends on the religion, beliefs, traditional laws and moral views of each society. The purpose of this study was to explore the experience of Iranian family caregivers of end stage cancer patients about ethical decision making.
methodsThis qualitative study is based on van Manen's method of hermeneutic phenomenology. In-depth interviews were carried out to collect data. Participants were 12 caregiver. Audiotapes were transcribed and analyzed for common themes that represented the participants' experiences. Trustworthiness of the findings was established using the Lincoln and Guba's criteria.
resultsThree themes reflected the essence of caregivers' lived experience including; fluctuating between hope and despair, wandering dilemma, and ethical decision making. Each of these themes consisted of several subthemes.
conclusionThe present study revealed that, the caregivers of terminally ill cancer patients need different information about prognosis and end of life decision making process. Our perception of how families negotiate ethical issues in their decision-making is still developing. Opportunities should be created to empowering caregivers to talk about their uncertainties and concerns.
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