Evidence map›Paper›PMID 39537204›Full record

ArticleBMJ supportive & palliative care2026

Caregiver burden and quality of life in palliative care: cross-sectional study.

Suhail K Shefeek, Teena Mary Joy, Jeby Jose Olickal, Malathu Abdulnazer Nezrin, Annie George, Kavumpurathu Raman Thankappan

Abstract read
In one paragraph

Article in BMJ supportive & palliative care, 2026. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 8 papers.

0numbers the graph read from it
0cells of the map it votes in
8citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

8 citing papers in PubMed.

  1. Article
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  4. Effect of caregiver burden on the quality of life of informal caregivers of people with cystic fibrosis in the United Kingdom: a cross-sectional study.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2025
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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

6 authors.

Suhail K ShefeekDepartment of Public Health, Amrita Institute of Medical Sciences, Kochi, Kerala, India.
Teena Mary JoyDepartment of Community Medicine, Amrita Institute of Medical Sciences, Kochi, Kerala, India teenamj@aims.amrita.edu.
Jeby Jose OlickalAmrita Institute of Medical Sciences, Kochi, Kerala, India.ORCID http://orcid.org/0000-0002-0298-5363
Malathu Abdulnazer NezrinGovernment Medical College, Ernakulam, Kerala, India.
Annie GeorgeTrustee, Arike Palliative Care, Kochi, Kerala, India.
Kavumpurathu Raman ThankappanDepartment of Public Health, Amrita Institute of Medical Sciences, Kochi, Kerala, India.

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

backgroundLiterature on caregiver burden is limited in India and Kerala. We examined the prevalence and factors associated with caregiver burden and its impact on their quality of life.

methodsWe conducted a cross-sectional study among 115 informal caregivers (mean age 70 years, 80% female) of palliative care patients in Kerala. Caregivers were interviewed using the Zarit Burden Interview-22 and the WHOQOL-BREF questionnaires. Factors associated with caregiver burden were analysed using binary logistic regression.

resultsThe prevalence of moderate to severe burden was 32.1% (95% CI 23.7% to 41.5%), with 6.2% reporting severe burden (95% CI 2.4% to 12.1%). Caregivers of patients aged ≥73 years (adjusted OR (aOR)=7.19, 95% CI 1.87 to 27.71, p=0.004), children acting as caregivers (aOR=11.09, 95% CI 1.21 to 101.03, p=0.033) and those caring for patients with prolonged disease duration (aOR=3.62, 95% CI 1.04 to 12.67, p=0.044) reported significantly higher burden compared with their counterparts. Moderate to severe burden was associated with lower physical (p<0.001), psychological (p<0.001) and social relations (p=0.002) quality of life scores.

conclusionTargeted interventions for caregivers of older patients, children acting as caregivers and those taking care of patients with prolonged disease duration are likely to reduce burden and improve their quality of life.

Indexed as

Caregiver BurdenCaregiversCost of IllnessPalliative CareQuality of LifeAdultAgedAged, 80 and overCross-Sectional StudiesFemaleHumansIndiaMaleMiddle AgedPrevalenceSurveys and QuestionnairesChronic conditionsHome carePalliative care

Identifiers

PMID39537204
PMCPMC13422066

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LicenceCC BY-NC
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Registered trials

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.