Evidence map›Paper›PMID 39532725›Full record

ArticleZeitschrift fur Rheumatologie2025

[Measurement of disease-related knowledge of patients with axial spondyloarthritis-Development and application of the G-ASKQ7 questionnaire].

Louis Schuster, Jörg Henes, Matthias Diener, Felix Mühlensiepen, Ioana Andreica, Axel Hueber, Georg Schett, Johannes Knitza

Abstract readValidation StudyEnglish Abstract
In one paragraph

Article in Zeitschrift fur Rheumatologie, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 5 papers.

0numbers the graph read from it
0cells of the map it votes in
5citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

5 citing papers in PubMed.

  1. Article
  2. Review
  3. Article
  4. Article
  5. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

8 authors.

Louis SchusterFriedrich-Alexander-Universität Erlangen-Nürnberg (FAU) Erlangen-Nürnberg, Erlangen-Nürnberg, Deutschland. Louis.Schuster@uk-erlangen.de.
Jörg HenesZentrum für interdisziplinäre Rheumatologie, Immunologie und Autoimmunerkrankungen (INDIRA) und Innere Medizin II, Universitätsklinik Tübingen, Tübingen, Deutschland.
Matthias DienerDigital Rheuma Lab, Berlin, Deutschland.
Felix MühlensiepenZentrum für Versorgungsforschung, Fakultät für Gesundheitswissenschaften, Medizinische Hochschule Brandenburg, Rüdersdorf bei Berlin, Deutschland.
Ioana AndreicaRuhr-Universität Bochum, Bochum, Nordrhein-Westfalen, Deutschland.
Axel HueberAbteilung Rheumatologie, Klinik für Innere Medizin 5, Klinikum Nürnberg, Universitätsklinik der Paracelsus Medizinischen Universität, Nürnberg, Deutschland.
Georg SchettFriedrich-Alexander-Universität Erlangen-Nürnberg (FAU) Erlangen-Nürnberg, Erlangen-Nürnberg, Deutschland.
Johannes KnitzaFriedrich-Alexander-Universität Erlangen-Nürnberg (FAU) Erlangen-Nürnberg, Erlangen-Nürnberg, Deutschland. knitza@uni-marburg.de.

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

BACKGROUND AND

objectivePatient education is an integral component of the treatment of axial spondyloarthritis (axSpA). However, the validated tools currently available for assessing disease-related knowledge are outdated and, in the case of axSpA, only available in English. The aims of this work were therefore (1) to develop a German-language tool for assessing disease-specific knowledge among axSpA patients and (2) to assess this tool in a pilot study.

methodsAvailable axSpA-specific tools were assessed by a panel of experts and a draft of the current G‑ASKQ7 questionnaire was agreed upon. After evaluation of face validity and subsequent adaptation, consecutive adult axSpA patients of a university hospital (Universitätsklinikum Erlangen) outpatient rheumatology department were asked to complete the questionnaire. Correlation between the patients' overall scores and other collected parameters (age, sex, and disease duration) were investigated.

resultsPatients rated the developed G‑ASKQ7 questionnaire comprising seven questions as easy to understand and completed it within an average of 6.3 ± 2.0 min. The final questionnaire was completed by 65 axSpA patients (36 women; mean age 45.3 ± 12.4 years; mean disease duration 8.6 ± 7.3 years). The average G‑AKSQ7 score was 17.8/25, with significantly higher scores among women (19.0/25) than men (16.3/25; p ≤ 0.05). The question most often answered correctly (79.3 %) was question 7 concerning disease self-management, whereas question 4 on measurement of disease activity received the most incorrect answers (55.8 %). No significant correlation between disease duration (p = 0.57; Pearson's correlation coefficient, r = 0.07) or age (p  = 0.67; r = -0.05) and disease-specific knowledge was found.

conclusionThe G‑ASKQ7 represents the first German-language instrument for measuring disease-specific knowledge among axSpA patients. Routine application of this questionnaire would enable low-threshold assessment of an individual patient's knowledge requirements and thus provision of appropriate educational information. Continuous updates and further evaluation studies are required.

Indexed as

Axial SpondyloarthritisHealth Knowledge, Attitudes, PracticeHealth LiteracyPatient Education as TopicPsychometricsAdultFemaleGermanyHumansMaleMiddle AgedPilot ProjectsReproducibility of ResultsSensitivity and SpecificitySurveys and QuestionnairesTranslatingAxial spondyloarthritisHealth competenceHealth services researchPatient educationSelf-management

Identifiers

PMID39532725
PMCPMC12134029

What OpenQuestion holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.