Evidence map›Paper›PMID 39532432›Full record

ArticleMedical humanities2025

Making my voice and owning its future.

Jamie Preece, Emma Sullivan, Fin Tams-Gray, Graham Pullin

Abstract read
In one paragraph

Article in Medical humanities, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.

0numbers the graph read from it
0cells of the map it votes in
0citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

0 citing papers in PubMed.

No citing paper in PubMed yet.

4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

4 authors.

Jamie PreeceBarnsley Assistive Technology Team, Barnsley, UK.
Emma SullivanUnaffiliated, Barnsley, UK.
Fin Tams-GrayDuncan of Jordanstone College of Art and Design, University of Dundee, Dundee, UK.
Graham PullinDuncan of Jordanstone College of Art and Design, University of Dundee, Dundee, UK G.Pullin@dundee.ac.uk.ORCID http://orcid.org/0000-0002-0841-8909

Funding

Wellcome Trust
6 · The paper itself

Abstract

This article explores disabled experience and the future of technologies relating to augmentative and alternative communication (AAC). This field includes people's use of AAC devices, typically in combination with other modes of communication, including vocalising, revoicing and body language. Such devices have speech technology and digital voices built into them and we will consider who could be said to have ownership of these technologies. We will also explore the role that people who use AAC have in making their AAC-and how this also contributes to shaping its future. The meanings of 'voice', 'making' and 'ownership' in the context of AAC are many. Yet too often the relationship between these is presented as if it is singular and straightforward. This paper will start by considering the most prevalent, obvious interpretations and build alternative and more complex directions from there. One of the authors uses AAC and is constantly personalising his software, editing and remaking it to reflect his needs and current thinking, representing his voice in ways that he feels ownership of; another is a life partner and can also be thought of as being part of his AAC. Two authors are researchers in an art school, where the act of making things in studios and workshops is inseparable from creative authorship and ownership. Together, all four authors are exploring the meaning and making of speech technology, experimenting with and appropriating it in ways not anticipated by its developers. This paper is a hybrid of voices: disabled and non-disabled; academic and non-academic coresearchers; designers and codesigners. Its unconventional format is intended to reflect the unconventional relationship between the researchers and to represent the conversation between these different voices.

Indexed as

Communication Devices for People with DisabilitiesPersons with DisabilitiesVoiceCommunicationHumansOwnershipSpeechdesignDigital TechnologydisabilityMedical humanities

Identifiers

PMID39532432
PMCPMC11877047

What OpenQuestion holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.