Evidence map›Paper›PMID 39528641›Full record

ArticleScientific reports2024

Challenges of Polish families related to caring for a disabled child at home: a cross-sectional study.

Anna Bednarek, Marzena Laskowska, Iwona Bodys-Cupak

Abstract read
In one paragraph

Article in Scientific reports, 2024. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.

0numbers the graph read from it
0cells of the map it votes in
0citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

0 citing papers in PubMed.

No citing paper in PubMed yet.

4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

3 authors.

Anna BednarekDepartment of Health Promotion Chair of Nursing Development, Faculty of Health Sciences, Medical University of Lublin, S. Staszica 4-6 Street, 20-081, Lublin, Poland. anna.bednarek@umlub.pl.ORCID 0000-0002-6236-8244
Marzena LaskowskaDepartment of Obstetrics and Perinatology, Faculty of Medicine, Medical University of Lublin, K. Jaczewskiego 8 Street, 20-095, Lublin, Poland.ORCID 0000-0003-2602-4249
Iwona Bodys-CupakDepartment of Nursing Fundamentals, Institute of Nursing and Midwifery, Faculty of Health Sciences, Jagiellonian University Medical College, 31-501, Krakow, Poland.ORCID 0000-0002-8445-4442

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

A family with a disabled child has major changes and challenges. The difficulties experienced by the whole family are of various natures and relate to emotional, psychological, caring, and financial problems. The aim of the study is to learn about the challenges and involvement of Polish families in caring for a disabled child in the home environment. A cross-sectional pilot study was conducted in a group of 103 parents of disabled children. The proprietary questionnaire and a standardized scale for the Generalized Self-Efficacy Survey (GSES) were used as a research tool. The material for the study was collected online, using Google Forms software, and statistically processed. Emotional contact with a disabled child turned out to be the most difficult aspect of care for almost half of the respondents (42.7%). The vast majority of respondents (75.7%) described the level of difficulty in caring for a disabled child as much higher than the level of difficulty in caring for a healthy child. Most parents (87%) spend between 10 and 20% of their family income on the treatment and rehabilitation of disabled children. A significant relationship was noted between the assessment of the family's economic situation and place of residence (χ

Indexed as

CaregiversChildren with DisabilitiesParentsAdolescentAdultChildChild, PreschoolCross-Sectional StudiesFamilyFemaleHumansMaleMiddle AgedPilot ProjectsPolandSurveys and QuestionnairesCaring challengesDisabled childParentsSiblings

Identifiers

PMID39528641
PMCPMC11554644

What OpenQuestion holds

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LicenceCC BY-NC-ND
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Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.