Evidence map›Paper›PMID 39521469›Full record

ArticleBMJ open2024

Perspectives on the sustained engagement with digital health tools: protocol for a qualitative interview study among people living with Inflammatory Bowel Disease or irritable bowel syndrome.

Jenny L Olson, Amelia Palumbo, Chloé Desjardins, Chantel Wicks, Shania Bhopa, Kelsey Cheyne, Adrijana D'Silva, Lesley A Graff, Neeraj Narula, David M Rodrigues and 4 more

Abstract read
In one paragraph

Article in BMJ open, 2024. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 2 papers, 1 of them a synthesis that pooled it.

0numbers the graph read from it
0cells of the map it votes in
2citing papers in PubMed, 1 pooled it
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

2 citing papers in PubMed, 1 synthesis or guideline pooled it.

  1. Pooled it
  2. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

14 authors.

Jenny L OlsonMethodological and Implementation Research Program, Ottawa Hospital Research Institute, Ottawa, Ontario, Canada jolson@ohri.ca.ORCID http://orcid.org/0000-0003-2777-3794
Amelia PalumboMethodological and Implementation Research Program, Ottawa Hospital Research Institute, Ottawa, Ontario, Canada.
Chloé DesjardinsMethodological and Implementation Research Program, Ottawa Hospital Research Institute, Ottawa, Ontario, Canada.
Chantel WicksIMAGINE Network, McMaster University, Hamilton, Ontario, Canada.
Shania BhopaGlobal Health Program, McMaster University Faculty of Health Sciences, Hamilton, Ontario, Canada.
Kelsey CheyneCanadian Digestive Health Foundation, Oakville, Ontario, Canada.
Adrijana D'SilvaDepartment of Community Health Sciences, University of Calgary Cumming School of Medicine, Calgary, Alberta, Canada.ORCID http://orcid.org/0000-0003-1976-7685
Lesley A GraffDepartment of Clinical Health Psychology, University of Manitoba Max Rady College of Medicine, Winnipeg, Manitoba, Canada.
Neeraj NarulaFarncombe Family Digestive Health Institute, McMaster University, Hamilton, Ontario, Canada.
David M RodriguesDivision of Gastroenterology, Queen's University School of Medicine, Kingston, Ontario, Canada.
Aida FernandesIMAGINE Network, McMaster University, Hamilton, Ontario, Canada.
Deborah A MarshallIMAGINE Network, McMaster University, Hamilton, Ontario, Canada.ORCID http://orcid.org/0000-0002-8467-8008
Paul MoayyediIMAGINE Network, McMaster University, Hamilton, Ontario, Canada.ORCID http://orcid.org/0000-0002-3616-9292
Justin PresseauMethodological and Implementation Research Program, Ottawa Hospital Research Institute, Ottawa, Ontario, Canada.

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

introductionDigital health tools can be beneficial in the care of patients with chronic conditions and have the potential for widespread impact as readily scalable and cost-effective health interventions. However, benefits are often contingent on users sustaining their engagement with these tools over time. Sustained engagement with digital health tools can be challenging, and high rates of attrition from digital interventions are common. Inflammatory Bowel Disease (IBD) and irritable bowel syndrome (IBS) are prominent gastrointestinal conditions resulting in significant burdens for individuals and society. Emerging evidence suggests digital health tools can be beneficial for IBD and IBS management; however, it is not clear what barriers and enablers are experienced by people living with these conditions to sustaining their engagement with these tools, when necessary. Such knowledge could inform the tailoring of new and existing digital health tools to the needs of people living with IBD and/or IBS. This study will seek to identify the barriers and enablers of sustained engagement with digital health tools among adults living with IBD and/or IBS. METHODS AND ANALYSIS: We will conduct semistructured interviews with a purposive sample of approximately 30 adults (>18 years) who (a) reside in Canada, (b) self-report that they have been diagnosed with IBD and/or IBS, (c) have ever used a digital health tool (ie, any application/platform) to manage their condition and (d) are capable of providing informed consent. Interviews will be audio and video recorded and transcribed verbatim. Data will be coded deductively and barriers and enablers to sustained engagement will be categorised in accordance with the Theoretical Domains Framework. Data analysis will be verified by a patient research partner. ETHICS AND DISSEMINATION: The study has been approved by the Ottawa Health Science Network Research Ethics Board. The findings will inform the codevelopment of strategies to overcome modifiable barriers and leverage identified enablers of sustained engagement with digital health tools for IBD and IBS care. These strategies can inform the design of new, or modifications to existing, digital health tools for IBD and IBS care where sustained engagement is desirable. Strategies will be compiled into a guidebook and disseminated via the Inflammation, Microbiome and Alimentation: Gastro-Intestinal and Neuropsychiatric Effects (IMAGINE) Strategy for Patient Oriented Research chronic disease network in Canada.

Indexed as

Inflammatory Bowel DiseasesIrritable Bowel SyndromeQualitative ResearchAdultCanadaDigital HealthFemaleHumansInterviews as TopicResearch DesignTelemedicineBehavioureHealthInflammatory Bowel DiseaseIrritable bowel syndromeQualitative research

Identifiers

PMID39521469
PMCPMC11551993

What OpenQuestion holds

Textmetadata
LicenceCC BY-NC
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.