Evidence map›Paper›PMID 39510534›Full record

ArticleApplied clinical informatics2025

Collection of Patient-Reported Outcome Measures in Rural and Underserved Populations.

Andrea Cheville, Crystal L Patil, Andrew D Boyd, Leslie J Crofford, Dana Dailey, Victoria de Martelly, Guilherme Del Fiol, Miriam O Ezenwa, Keturah R Faurot, Mitch Knisely and 9 more

Abstract read
In one paragraph

Article in Applied clinical informatics, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 2 papers.

0numbers the graph read from it
0cells of the map it votes in
2citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

2 citing papers in PubMed.

  1. Trial
  2. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

19 authors.

Andrea ChevilleMayo Clinic Comprehensive Cancer Center, Rochester, Minnesota, United States.
Crystal L PatilSchool of Nursing, University of Michigan, Ann Arbor, Michigan, United States.
Andrew D BoydDepartment of Biomedical and Health Information Sciences, University of Illinois Chicago, Chicago, Illinois, United States.
Leslie J CroffordDepartment of Medicine, Vanderbilt University Medical Center, Nashville, Tennessee, United States.
Dana DaileyDepartment of Physical Tehrapy and Rehabilitation Science, University of Iowa, Iowa City, Iowa, United States.
Victoria de MartellyCollege of Nursing, University of Illinois Chicago, Chicago, Illinois, United States.
Guilherme Del FiolDepartment of Biomedical Informatics, University of Utah School of Medicine, Salt Lake City, Utah, United States.
Miriam O EzenwaCollege of Nursing, University of Florida, Gainesville, Florida, United States.
Keturah R FaurotDepartment of Physical Medicine and Rehabilitation, University of North Carolina School of Medicine, Chapel Hill, North Carolina, United States.
Mitch KniselySchool of Nursing, Duke University, Durham, North Carolina, United States.
Kaitlyn R McLeodDepartment of Medicine, University of Colorado, Denver, Colorado, United States.
Natalia E MoroneChobanian and Avedisian School of Medicine, Boston Medical Center, Boston University, Boston, Massachusetts, United States.
Emily O'BrienDepartment of Population Health Sciences, Duke University School of Medicine, Durham, North Carolina, United States.
Rosa M Gonzalez-GuardaSchool of Nursing, Duke University, Durham, North Carolina, United States.
Kathleen A SlukaDepartment of Physical Tehrapy and Rehabilitation Science, University of Iowa, Iowa City, Iowa, United States.
Karen StamanDepartment of Physical Therapy and Athletic Training, University of Utah, Salt Lake City, Utah, United States.
Anne ThackerayDepartment of Physical Therapy and Athletic Training, University of Utah, Salt Lake City, Utah, United States.
Christina K ZiglerDepartment of Population Health Sciences, Duke University School of Medicine, Durham, North Carolina, United States.
Judith M SchlaegerCollege of Nursing, University of Illinois Chicago, Chicago, Illinois, United States.

Funding

NIH Health Care Systems Research Collaboratory-Coordinating Center (U24)U24AT009676 · NCCIH · DUKE UNIVERSITY · PI LESLEY H CURTIS, Adrian Hernandez · 2017 to 2026
$21.5M
Group-Based Mindfulness for Patients with Chronic Low Back Pain in the Primary CareUH3AT010621 · NCCIH · BOSTON MEDICAL CENTER · PI MORONE, NATALIA E. · 2020 to 2023
$7.8M
Fibromyalgia TENS in Physical Therapy Study (TIPS): an embedded pragmatic clinical trial: Administrative SupplementUH3AR076387 · NIAMS · UNIVERSITY OF IOWA · PI CROFFORD, LESLIE J, SLUKA, KATHLEEN A · 2020 to 2023
$7.3M
HEAL Collaboratory Resource Coordinating Center (PRISM) (U24): Bioethics SupplementU24AT010961 · NCCIH · DUKE UNIVERSITY · PI CURTIS, LESLEY H, HERNANDEZ, ADRIAN · 2019 to 2021
$6.4M
Hybrid Effectiveness-Implementation Trial of Guided Relaxation and Acupuncture for Chronic Sickle Cell Disease PainUH3AT011265 · NCCIH · UNIVERSITY OF ILLINOIS AT CHICAGO · PI DOORENBOS, ARDITH Z, EZENWA, MIRIAM OMELEBELE · 2021 to 2024
$6.4M
Non-pharmacological Options in postoperative Hospital-based And Rehabilitation pain Management (NOHARM) pragmatic clinical trialUH3AG067593 · NIA · MAYO CLINIC ROCHESTER · PI CHEVILLE, ANDREA LYNNE, TILBURT, JON C · 2020 to 2023
$6.0M
Nonpharmacologic Pain Management in FQHC primary care clinicsUH3NR019943 · NINR · UNIVERSITY OF UTAH · PI FRITZ, JULIE M · 2021 to 2024
$4.9M
Interdisciplinary Training Program in Pain ResearchT32NS045549 · NINDS · UNIVERSITY OF IOWA · PI KATHLEEN A SLUKA, Yuriy M Usachev · 2004 to 2026
$3.7M
Colorado StARR Program in Medicine and Pediatrics (CSPMP)R38HL143511 · NHLBI · UNIVERSITY OF COLORADO DENVER · PI Steven Herbert Abman, Peter N. Buttrick · 2020 to 2026
$2.7M
Group-based mindfulness for patients with chronic low back pain in the primary care settingUG3AT010621 · NCCIH · BOSTON MEDICAL CENTER · PI MORONE, NATALIA E. · 2019 to 2019
$908k
Hybrid Effectiveness-Implementation Trial of Guided Relaxation and Acupuncture for Chronic Sickle Cell Disease PainUG3AT011265 · NCCIH · UNIVERSITY OF ILLINOIS AT CHICAGO · PI DOORENBOS, ARDITH Z, EZENWA, MIRIAM OMELEBELE · 2020 to 2020
$827k
Nonpharmacologic Pain Management in FQHC primary care clinicsUG3NR019943 · NINR · UNIVERSITY OF UTAH · PI FRITZ, JULIE M · 2020 to 2020
$777k
NCCIH NIH HHS U24 AT009676NCCIH NIH HHS U24 AT010961NCCIH NIH HHS UG3 AT010621NCCIH NIH HHS UG3 AT011265NCCIH NIH HHS UH3 AT010621NCCIH NIH HHS UH3 AT011265NHLBI NIH HHS R38 HL143511NIAMS NIH HHS UG3 AR076387NIAMS NIH HHS UH3 AR076387NIA NIH HHS UG3 AG067593NIA NIH HHS UH3 AG067593NIH HHS U24AT009676NINDS NIH HHS T32 NS045549NINR NIH HHS UG3 NR019943NINR NIH HHS UH3 NR019943
6 · The paper itself

Abstract

backgroundThe NIH Pragmatic Trials Collaboratory supports the design and conduct of 31 embedded pragmatic clinical trials, and many of these trials use patient-reported outcome measures (PROMs) to provide valuable information about the patients' health and wellness. Often these trials enroll medically underserved patients, including people with incomes below the federal poverty threshold, racial or ethnic minority groups, or rural or frontier communities.

objectivesIn this series of trial case reports, we provide lessons learned about collecting PROMs in these populations. Unbiased collection of PROM data is critical to increase the generalizability of trial outcomes and to address health inequities. Use of electronic health records (EHRs) and other digital modes of PROM administration has gained traction. However, engagement with these modes is often low among populations prone to disparity due to lower digital proficiency, device access, and uptake of EHR portals and web interfaces.

methodsTo maximize the completeness and representativeness of their trial outcome data, study teams tested a range of strategies to improve PROM response rates with emphasis on disparities prone and underserved patient groups. This manuscript describes the approaches, their implementation, and the targeted populations.

conclusionOptimized PROM collection required hybrid approaches with multiple outreach modes, high-touch methods, creativity in promoting digital uptake, multimodal participant engagement, and text messaging.

Indexed as

Data CollectionMedically Underserved AreaPatient Reported Outcome MeasuresRural PopulationVulnerable PopulationsElectronic Health RecordsHumans

Identifiers

PMID39510534
PMCPMC11922614

What OpenQuestion holds

Textmetadata
LicenceCC BY-NC-ND
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.