Evidence map›Paper›PMID 39509700›Full record

ArticleJMIR diabetes2024

Beyond Hemoglobin A1c-Outcomes That Matter to Individuals With Type 1 Diabetes in Adopting Digital Health Interventions for Self-Management Support: Qualitative Study.

Benjamin Markowitz, Stephanie de Sequeira, Adhiyat Najam, Cheryl Pritlove, Dana Greenberg, Marley Greenberg, Chee-Mei Chan, Gurpreet Lakhanpal, Samyukta Jagadeesh, Geetha Mukerji and 6 more

Abstract read
In one paragraph

Article in JMIR diabetes, 2024. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 3 papers, 1 of them a synthesis that pooled it.

0numbers the graph read from it
0cells of the map it votes in
3citing papers in PubMed, 1 pooled it
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

3 citing papers in PubMed, 1 synthesis or guideline pooled it.

  1. Pooled it
  2. Article
  3. Review
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

16 authors.

Benjamin Markowitz *Unity Health Toronto, Toronto, ON, Canada.ORCID https://orcid.org/0009-0003-3903-9981
Stephanie de Sequeira *Unity Health Toronto, Toronto, ON, Canada.ORCID https://orcid.org/0000-0002-1560-6190
Adhiyat NajamUnity Health Toronto, Toronto, ON, Canada.ORCID https://orcid.org/0000-0001-9759-5060
Cheryl PritloveUnity Health Toronto, Toronto, ON, Canada.ORCID https://orcid.org/0000-0001-9627-7562
Dana GreenbergDiabetes Action Canada, Toronto, ON, Canada.ORCID https://orcid.org/0000-0002-1501-4267
Marley GreenbergDiabetes Action Canada, Toronto, ON, Canada.ORCID https://orcid.org/0000-0001-7678-8699
Chee-Mei ChanUniversity Health Network, Toronto, ON, Canada.ORCID https://orcid.org/0009-0001-8427-2534
Gurpreet LakhanpalUnity Health Toronto, Toronto, ON, Canada.ORCID https://orcid.org/0000-0003-4228-4382
Samyukta JagadeeshTrillium Health Partners, Mississauga, ON, Canada.ORCID https://orcid.org/0009-0008-2094-6983
Geetha MukerjiUniversity of Toronto, Toronto, ON, Canada.ORCID https://orcid.org/0000-0002-6477-9848
Rayzel ShulmanThe Hospital for Sick Children, Toronto, ON, Canada.ORCID https://orcid.org/0000-0001-9943-1529
Holly O WittemanUniversité Laval, Quebec City, QC, Canada.ORCID https://orcid.org/0000-0003-4192-0682
Catherine H YuUnity Health Toronto, Toronto, ON, Canada.ORCID https://orcid.org/0000-0002-2355-1046
Gillian L Booth *Unity Health Toronto, Toronto, ON, Canada.ORCID https://orcid.org/0000-0003-2769-6522
Janet A Parsons *Unity Health Toronto, Toronto, ON, Canada.ORCID https://orcid.org/0000-0001-9010-4118
T1ME Patient Advisory Committee

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

backgroundType 1 diabetes is a demanding chronic condition that requires diligent blood glucose monitoring and timely insulin administration by patients who must integrate self-management into their daily lives.

objectiveThis study aimed to better understand what outcome measures are important to individuals living with type 1 diabetes (T1D) in Ontario, Canada, to help inform the development of type 1 diabetes virtual self-management Education and support (T1ME) trial.

methodsA qualitative approach was used, in which we conducted 6 focus groups with a total of 24 adult participants living with T1D (from age 18 to >65 years) in Ontario. Each focus group was semistructured in nature; participants were encouraged to talk openly about their experiences with T1D self-management and provide their perspectives on more focused topics such as technology and relationships with health care providers.

resultsAn interpretive analysis helped us devise a framework for our results that centered around 6 main discussion themes: (1) adapting self-management to meet evolving needs, (2) looking "beyond A1c" toward more personalized indicators of glycemic management, (3) the benefits and challenges of adopting new T1D technology, (4) establishing trusting relationships with diabetes care providers, (5) perceived benefits of peer support, and (6) pre- and post-COVID-19 perspectives on virtual care.

conclusionsOur goal is for these findings to help facilitate the development of patient-oriented outcome measures that are in line with the unique needs and preferences of T1D patients in this new, more virtual landscape of clinical care, education, and self-management support.

Indexed as

mobile phonepatient reported outcome measurespatient reported outcomesT1D self-managementtype 1 diabetesvirtual care

Identifiers

PMID39509700
PMCPMC11582490

What OpenQuestion holds

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Registered trials

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.