Evidence map›Paper›PMID 39499697›Full record

ArticlePloS one2024

Evaluating public and patient involvement in interventional research-A newly developed checklist (EPPIIC).

Elise Pyne, Robert Joyce, Christopher P Dwyer, Sinéad M Hynes

Abstract read
In one paragraph

Article in PloS one, 2024. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 1 paper.

0numbers the graph read from it
0cells of the map it votes in
1citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

1 citing paper in PubMed.

  1. A cluster-randomised controlled feasibility trial evaluating the Cognitive Occupation-Based programme for people with Multiple Sclerosis (COB-MS).Neurological sciences : official journal of the Italian Neurological Society and of the Italian Society of Clinical Neurophysiology · 2025
    Trial
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

4 authors.

Elise PyneSchool of Medicine, College of Medicine, Nursing and Health Sciences, University of Galway, Galway, Ireland.
Robert JoyceSchool of Health Sciences, College of Medicine, Nursing and Health Sciences, University of Galway, Galway, Ireland.
Christopher P DwyerHEA Performance & Dept. of Teacher Education, Technological University of the Shannon, Athlone, Ireland.
Sinéad M HynesSchool of Health Sciences, College of Medicine, Nursing and Health Sciences, University of Galway, Galway, Ireland.ORCID 0000-0002-3199-7355

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

Public and patient involvement (PPI) has been identified as an increasingly desired and, often, required component of trial methodology-leading to higher quality, more accessible and relevant clinical research, alongside increased recruitment, funding success and insight into research impact. However, despite the great variety of frameworks and checklists available for assessing PPI, most are limited with respect to important features (e.g. applicable in specific contexts only, fail to clarify what should be assessed and reported, lack the necessary comprehensiveness or are biased in favour of researcher reporting). Thus, the current research aimed to address such limitations through the development of a new checklist, the EPPIIC, through review, thematic analysis and 'meta-evaluation' in conjunction with PPI engagement. Upon completion of the EPPIIC, three thematic 'sub-scales' emerged: (1) Policy & Practice, (2) Participatory Culture and (3) Influence & Impact. All findings are presented and discussed in light of theory and research. Notably, findings recommend EPPIIC as a useful means of assessing PPI in future trials.

Indexed as

ChecklistPatient ParticipationBiomedical ResearchCommunity ParticipationHumansResearch Design

Identifiers

PMID39499697
PMCPMC11537402

What OpenQuestion holds

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Registered trials

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.