Evidence map›Paper›PMID 39497492›Full record

ArticleDevelopmental medicine and child neurology2025

Psychometric properties of the Pediatric Evaluation of Disability Inventory - Patient Reported Outcome: A cognitively accessible measure of functional performance.

Jessica M Kramer, Pengsheng Ni, Beth Pfeiffer, Andrew Persch, Fiorella Guerrero Calle, Ariel Schwartz, Elizabeth Barbour, Daniel K Davies

Abstract read
In one paragraph

Article in Developmental medicine and child neurology, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 1 paper.

0numbers the graph read from it
0cells of the map it votes in
1citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

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2 · The registry

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3 · Its place in the literature

Who cites it

1 citing paper in PubMed.

  1. Article
4 · The record

Corrections and comments

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5 · Who and what money

Authors and funding

8 authors.

Jessica M KramerDepartment of Occupational Therapy, University of Florida, Gainesville, FL, USA.ORCID 0000-0002-3433-2842
Pengsheng NiBiostatitics & Epidemiology Data Analytic Center, Boston University School of Public Health, Boston, MA, USA.
Beth PfeifferDepartment of Health and Rehabilitation Sciences, Temple University, Philadelphia, PA, USA.
Andrew PerschDepartment of Occupational Therapy, Colorado State University, Fort Collins, CO, USA.
Fiorella Guerrero CalleDepartment of Occupational Therapy, University of Florida, Gainesville, FL, USA.
Ariel SchwartzInstitute on Disability, University of New Hampshire, Durham, NH, USA.ORCID 0000-0002-4051-8870
Elizabeth BarbourDepartment of Occupational Therapy, University of Florida, Gainesville, FL, USA.
Daniel K DaviesAbleLink Smart Living Technologies, LLC, Colorado Springs, CO, USA.

Funding

Enabling self-reported outcomes for youth with developmental disabilities: The Pediatric Evaluation of Disability Inventory - Patient Reported Outcome (PEDI-PRO) - Phase IIR42HD090772 · NICHD · ABLELINK TECHNOLOGIES, INC. · PI DAVIES, DANIEL K, KRAMER, JESSICA MARVELLE · 2020 to 2020
$1.5M
Eunice Kennedy Shriver National Institute Of Child Health & Human Development (NICHD), National Institutes of Health (NIH), Award R42HD090772NICHD NIH HHS R42 HD090772
6 · The paper itself

Abstract

aimTo evaluate the structural validity, internal reliability, and measurement invariance of the Pediatric Evaluation of Disability Inventory - Patient Reported Outcome (PEDI-PRO), a measure of functional performance of discrete tasks required to participate in everyday life situations important for adulthood.

methodThis was a cross-sectional study with 306 young people aged 14 to 22 years (mean 18 years 10 months, SD 2 years 5 months) with developmental disabilities (43.1% autism spectrum disorder only, 23.9% intellectual disability, 17.6% other disability, 11.4% both autism spectrum disorder and intellectual disability, 3.9% missing) completed the PEDI-PRO. Following COnsensus-based Standards for selection of health Measurement INstruments (COSMIN) criteria, we conducted a confirmatory factor analysis, applied a Rasch rating-scale model, examined Cronbach's alpha, Rasch person reliability and separation coefficients, and differential item functioning (DIF).

resultsStructural validity was good for the daily activities and mobility domains, and acceptable for the social/cognitive domain. The 3-point Likert response scale functioned as intended. All domains demonstrated acceptable internal consistency on all criteria. One or two items in each domain demonstrated DIF, but the impact on all domain scores was less than 1.0 threshold.

interpretationThe cognitively accessible design and innovative conceptual measurement framework probably contributed to these promising findings. The PEDI-PRO addresses a gap in high-quality patient-reported outcome measures that assess priority outcomes for young people with developmental disabilities.

Indexed as

Developmental DisabilitiesDisability EvaluationIntellectual DisabilityPatient Reported Outcome MeasuresPsychometricsActivities of Daily LivingAdolescentAutism Spectrum DisorderCross-Sectional StudiesFemaleHumansMaleReproducibility of ResultsYoung Adult

Identifiers

PMID39497492
PMCPMC12049558

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.