Evidence map›Paper›PMID 39497374›Full record

ArticlePalliative & supportive care2024

Making space for grief: The impact of remembrance programs for pediatric healthcare providers.

Lori Wiener, Parinita Nautiyal, Stacey McAdams, Mike Zoosman

Abstract read
In one paragraph

Article in Palliative & supportive care, 2024. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 3 papers.

0numbers the graph read from it
0cells of the map it votes in
3citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

3 citing papers in PubMed.

  1. Article
  2. Article
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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

4 authors.

Lori WienerPediatric Oncology Branch, National Cancer Institute, Center for Cancer Research, NIH, Bethesda, MD, USA.ORCID 0000-0002-9573-8870
Parinita NautiyalPediatric Oncology Branch, National Cancer Institute, Center for Cancer Research, NIH, Bethesda, MD, USA.
Stacey McAdamsDepartment of Clinical Research Informatics, NIH Clinical Center, Bethesda, MD, USA.
Mike ZoosmanDepartment of Spiritual Care, NIH Clinical Center, Bethesda, MD, USA.

Funding

Intramural NIH HHS Z99 CA999999
6 · The paper itself

Abstract

objectivesWhile caring for seriously ill children is a rewarding experience, pediatric healthcare providers may experience sadness and emotional distress when their patient dies. These feelings, particularly when not addressed, can lead to negative health and occupational outcomes. Remembrance practices can provide a safe space for staff to process their grief. This study explored pediatric healthcare providers' perceptions of an annual Pediatric Remembrance Ceremony (PRC) and a quarterly program, Good Grief and Chocolate at Noon (GGCN), to learn what components of the programs were considered meaningful and the personal impact on those who attended. The programs pivoted to a virtual platform during the COVID-19 pandemic, and the study also assessed providers' perspectives of attending the programs virtually.

methodsA 19 multiple choice survey instrument was designed, reviewed, piloted, revised, and re-piloted by an interdisciplinary bereavement committee prior to administration. The survey included 2 open-ended questions, inviting additional insights into personal impact and future directions for remembrance programs. The survey was administered on an encrypted online platform.

resultsComponents of the PRC respondents most valued included the opportunity for staff to choose a name of a patient they cared for and to light a candle for that patient as their name is read. Those who participated in GGCN found story sharing helpful, along with having a speaker address a topic around loss and grief during the second half of the session. Both programs provided reflection, solidarity, and memorialization. Most respondents prefer having both in-person and virtual options. SIGNIFICANCE OF

resultsHealthcare providers are affected by the death of the children they care for and value opportunities provided to join colleagues in remembering their patients. The findings underscore the value of remembrance programs in supporting bereaved staff.

Indexed as

GriefHealth PersonnelPediatricsAdultChildCOVID-19FemaleHumansMaleMiddle AgedSurveys and Questionnairesbereavementgriefhealthcare providersPediatricremembrance ceremonyvirtual

Identifiers

PMID39497374
PMCPMC12315110

What OpenQuestion holds

Textmetadata
LicenceCC BY-NC-SA
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.