Evidence map›Paper›PMID 39488032›Full record

ArticlePatient education and counseling2025

Perspectives of international experts and the Danish citizens on the 'relevant knowledge' that citizens need for making informed choices about participation in cancer screening: Qualitative study.

Rikke Nicoline Stokholm, Pia Kirkegaard, Mette Bach Larsen, Henrik Hein Lauridsen, Dawn Stacey, Diane M Harper, Karen Sepucha, Kirsten McCaffery, Maren Reder, Michael Pignone and 5 more

Abstract read
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In one paragraph

Article in Patient education and counseling, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 1 paper, 1 of them a synthesis that pooled it.

0numbers the graph read from it
0cells of the map it votes in
1citing papers in PubMed, 1 pooled it
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

1 citing paper in PubMed, 1 synthesis or guideline pooled it.

  1. Pooled it
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

15 authors.

Rikke Nicoline StokholmUniversity Research Clinic for Cancer Screening, Department of Public Health Programmes, Randers Regional Hospital, Randers, Denmark; Department of Clinical Medicine, Aarhus University, Denmark. Electronic address: ristok@rm.dk.
Pia KirkegaardUniversity Research Clinic for Cancer Screening, Department of Public Health Programmes, Randers Regional Hospital, Randers, Denmark; Department of Clinical Medicine, Aarhus University, Denmark.
Mette Bach LarsenDepartment of Clinical Medicine, Aarhus University, Denmark; Research unit, Horsens Regional Hospital, Denmark.
Henrik Hein LauridsenDepartment of Sports Science and Clinical Biomechanics, University of Southern Denmark, Denmark.
Dawn StaceyOttawa Hospital Research Institute, University of Ottawa, Canada.
Diane M HarperUniversity of Michigan, Ann Arbor, MI, USA.
Karen SepuchaMassachusetts General Hospital, Harvard Medical School, Boston, MA, USA.
Kirsten McCafferySydney Health Literacy Lab, School of Public Health, Faculty of Medicine and Health, The University of Sydney, Sydney, NSW, Australia.
Maren RederInstitute of Psychology, University of Hildesheim, Hildesheim, Germany.
Michael PignoneDuke University, Department of Medicine, Durham, USA.
Mirjam FransenDepartment of Public and Occupational Health, Amsterdam University Medical Center, University of Amsterdam, Amsterdam, the Netherlands; Amsterdam Public Health Research Institute, Quality of Care and Digital Health, Amsterdam, the Netherlands; Department of Behavior and Health, Centre for Prevention, Lifestyle and Health, National Institute for Public Health and the Environment, Bilthoven, the Netherlands.
Robert J VolkDepartment of Health Services Research, The University of Texas MD Anderson Cancer Center, Houston, TX, USA.
Yvonne WengströmNVS, Karolinska Institutet and Karolinska Comprehensive Cancer Center, Karolinska University Hospital, Stockholm, Sweden.
Adrian EdwardsUniversity Research Clinic for Cancer Screening, Department of Public Health Programmes, Randers Regional Hospital, Randers, Denmark; PRIME Centre Wales, Division of Population Medicine, School of Medicine, Cardiff University, UK.
Berit AndersenUniversity Research Clinic for Cancer Screening, Department of Public Health Programmes, Randers Regional Hospital, Randers, Denmark; Department of Clinical Medicine, Aarhus University, Denmark.

Funding

Tumor Evolution and Metastasis ProgramP30CA016672 · NCI · UNIVERSITY OF TX MD ANDERSON CAN CTR · PI DIANE BODURKA · 1985 to 2026
$290.8M
NCI NIH HHS P30 CA016672
6 · The paper itself

Abstract

objectivesThis study aimed to investigate the perspectives of international experts and Danish citizens on relevant knowledge about population-based breast, colorectal and cervical cancer screening.

methodsThis was a qualitative interview study with focus group interviews with experts and Danish citizens eligible for breast, colorectal and/or cervical cancer screening. Data were collected using semi-structured interview guides, audio-recorded and transcribed verbatim. A thematic analysis was conducted.

resultsParticipants were nine international experts from Germany, Canada, the USA, Sweden, the Netherlands and Australia, and 54 citizens from Denmark. Most citizens had 'adequate' or 'problematic' levels of health literacy. Themes that experts and citizens agreed on were: knowledge about the disease and symptoms, practical information about screening, benefits of screening, the option of non-participation and the importance of having numeric information of possible screening outcomes. Experts agreed on the importance of knowledge about the harms of screening, but only a minority of citizens considered this important.

conclusionsThe experts and citizens disagreed on the relevance of knowledge about harms of screening and agreed on other relevant knowledge. PRACTICE IMPLICATIONS: What experts and citizens find important may not align when making informed decisions. Therefore, experts and citizens needs to be involved when developing questionnaires.

Indexed as

Breast NeoplasmsEarly Detection of CancerFocus GroupsHealth Knowledge, Attitudes, PracticeHealth LiteracyQualitative ResearchUterine Cervical NeoplasmsAdultAgedAustraliaCanadaChoice BehaviorColorectal NeoplasmsDecision MakingDenmarkFemaleBreast cancer screeningCancer screeningCervical cancer screeningColorectal cancer screeningDecision-makingInformed choiceKnowledge

Identifiers

PMID39488032
PMCPMC11980426

What OpenQuestion holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.