Evidence map›Paper›PMID 39487928›Full record

ArticleJournal of autism and developmental disorders2026

"It's Really Complicated": Engaging Key Stakeholders to Inform a Novel Parent-led Sexual Health Education Program for Autistic Youth.

Kelly T Cosgrove, Caitlin Middleton, Talia G Thompson, Brian Be, Lindsey DeVries

Abstract read
In one paragraph

Article in Journal of autism and developmental disorders, 2026. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.

0numbers the graph read from it
0cells of the map it votes in
0citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

0 citing papers in PubMed.

No citing paper in PubMed yet.

4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

5 authors.

Kelly T CosgroveDepartment of Pediatrics-Developmental Pediatrics, Children's Hospital Colorado, 13123 East 16th Avenue, Box 140, Aurora, CO, 80045, USA.
Caitlin MiddletonDepartment of Pediatrics-Developmental Pediatrics, Children's Hospital Colorado, 13123 East 16th Avenue, Box 140, Aurora, CO, 80045, USA.
Talia G ThompsonUniversity of Colorado School of Medicine, Aurora, CO, 80045, USA.
Brian BeJFK Partners, University of Colorado School of Medicine, Aurora, CO, 80045, USA.
Lindsey DeVriesDepartment of Pediatrics-Developmental Pediatrics, Children's Hospital Colorado, 13123 East 16th Avenue, Box 140, Aurora, CO, 80045, USA. lindsey.devries@childrenscolorado.org.ORCID http://orcid.org/0000-0002-8471-6756

Funding

Development of Psychopathology, Psychobiology, & BehaviorT32MH015442 · NIMH · UNIVERSITY OF COLORADO DENVER · PI JASON R TREGELLAS · 1985 to 2026
$10.2M
HRSA HHS UT2MC39440NIMH NIH HHS T32 MH015442
6 · The paper itself

Abstract

Autistic adolescents frequently encounter difficulties in managing changes associated with puberty, sexuality, and relationships, and parents may be a useful source of sexual and reproductive health education (SRE) for this population. Despite this, few evidence-based programs exist to support parents in this role. Thus, there is a need for the development of such programs, particularly those incorporating the lived experiences of key stakeholders. The present qualitative investigation aimed to determine the SRE needs of autistic youth and to inform a novel, parent-led SRE program. Data were collected through semi-structured interviews conducted with two rounds of focus groups with two stakeholder groups: parents of autistic children (N = 4) and adult autistic self-advocates (N = 4). Focus groups were recorded and transcribed verbatim. The research team conducted rapid qualitative analysis on all four transcripts, and major findings were summarized and triangulated across groups. Four overarching themes were identified: "Empower parents as educators," "Individualize supports and education," "Consider cultural and intersecting identities," and "Prioritize safety." Parents can serve a primary role in providing SRE to autistic youth and would likely benefit from participating in a tailored program that prioritizes safety and considers the influence of culture and other aspects of identity on content delivery. Future research on the implementation of such a program is needed.

Indexed as

Autistic DisorderParentsSex EducationSexual HealthAdolescentAdultFemaleFocus GroupsHumansMaleQualitative ResearchStakeholder ParticipationAutismParentsSelf-advocatesSexual and reproductive healthStakeholder

Identifiers

PMID39487928
PMCPMC12046058

What OpenQuestion holds

Textmetadata
LicenceTDM
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.