Evidence map›Paper›PMID 39487645›Full record

ArticleJournal of Crohn's & colitis2025

Effectiveness of Transitional Care in Inflammatory Bowel Disease; Development, Validation, and Initial Outcomes of a Transition Success Score.

Martha A C van Gaalen, Merel van Pieterson, Petra Waaijenberg, Angelika Kindermann, Victorien M Wolters, Alie Dijkstra, Herbert van Wering, Margreet Wessels, Lissy de Ridder, Dimitris Rizopoulos and 3 more

Abstract readMulticenter StudyValidation Study
In one paragraph

Article in Journal of Crohn's & colitis, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 5 papers, 1 of them a synthesis that pooled it.

0numbers the graph read from it
0cells of the map it votes in
5citing papers in PubMed, 1 pooled it
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

5 citing papers in PubMed, 1 synthesis or guideline pooled it.

  1. Guideline
  2. Review
  3. Article
  4. Review
  5. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

13 authors.

Martha A C van GaalenDepartment of Paediatric Gastroenterology, Erasmus MC-Sophia Children's Hospital, Rotterdam, The Netherlands.
Merel van PietersonDepartment of Paediatric Gastroenterology, Erasmus MC-Sophia Children's Hospital, Rotterdam, The Netherlands.
Petra WaaijenbergDepartment of Gastroenterology, Amsterdam UMC, Amsterdam, The Netherlands.
Angelika KindermannDepartment of Paediatric Gastroenterology, Amsterdam UMC - Emma Children's Hospital, Amsterdam, The Netherlands.
Victorien M WoltersDepartment of Paediatric Gastroenterology, UMC Utrecht - Wilhelmina Children's Hospital, Utrecht, The Netherlands.
Alie DijkstraDepartment of Paediatric Gastroenterology, UMC Groningen - Beatrix Children's Hospital, Groningen, The Netherlands.
Herbert van WeringDepartment of Paediatrics, Amphia Hospital, Breda, The Netherlands.
Margreet WesselsDepartment of Paediatrics, Rijnstate Hospital, Arnhem, The Netherlands.
Lissy de RidderDepartment of Paediatric Gastroenterology, Erasmus MC-Sophia Children's Hospital, Rotterdam, The Netherlands.
Dimitris RizopoulosDepartment of Biostatistics, Erasmus MC, Rotterdam, The Netherlands.ORCID 0000-0001-9397-0900
C Lauranne A A P DerikxDepartment of Gastroenterology, Erasmus MC, Rotterdam, The Netherlands.
Johanna C EscherDepartment of Paediatric Gastroenterology, Erasmus MC-Sophia Children's Hospital, Rotterdam, The Netherlands.
Kids with Crohn’s, Colitis (KiCC) Working Group for Collaborative Paediatric IBD Research in the Netherlands, the Dutch Initiative on Crohn and Colitis (ICC) and Dutch Nurses Network Inflammatory Bowel Disease (NIBD)

Funding

Erasmus MC Evidence-based care of nursing EBCN2020.t7Nurses European Crohn and Colitis Organization NL-2022-24_MK
6 · The paper itself

Abstract

BACKGROUND AND

aimsThe effectiveness of transition programs from pediatric to adult healthcare in adolescents with inflammatory bowel disease (IBD) is not clear, as prospective studies using validated outcome measures for transition are lacking. This study aimed to develop and validate a quantitative Transition Success Score (TSS), and to apply it in a multicenter setting to assess the effectiveness of transitional care.

methodsThe Top 10 outcome items related to a successful transition, identified through an international Delphi study with IBD stakeholders, were integrated into a generic questionnaire, the TSS. In a prospective, multicenter study, the TSS was scored by adult healthcare providers, young adult patients, and caregivers, 9-15 months after transfer of care.

resultsIn 7 Dutch hospitals, 160 patients completed the TSS. The mean score was 25 (range 17-27), 25.6% of patients achieving maximum score. Hypothesis testing for construct validity revealed significant associations with characteristics related to transitional care, such as knowledge, independence, and quality of life (p < 0.005). Structural validation indicated the score was most effective at discerning lower levels of transition success. Internal consistency was acceptable (0.64). High disease burden, exacerbation during or after transfer, and certain personality profiles were associated with lower scores.

conclusionsThe TSS serves as a quantitative tool to evaluate the effectiveness of transitional care interventions and to identify IBD patients at risk of encountering challenges during the transition to adult healthcare.

Indexed as

Inflammatory Bowel DiseasesOutcome Assessment, Health CareTransitional CareTransition to Adult CareAdolescentAdultDelphi TechniqueFemaleHumansMaleMiddle AgedNetherlandsProspective StudiesQuality of LifeSurveys and QuestionnairesYoung AdultIBDinflammatory bowel diseasetransitionyoung adults

Identifiers

PMID39487645
PMCPMC12041418

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Registered trials

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.