Evidence map›Paper›PMID 39470942›Full record

ArticleJournal of cancer survivorship : research and practice2026

Perspectives of patients, partners, primary and hospital-based health care professionals on living with advanced cancer and systemic treatment.

Evie E M Kolsteren, Esther Deuning-Smit, Judith B Prins, Winette T A van der Graaf, Linda Kwakkenbos, José A E Custers

Abstract read
In one paragraph

Article in Journal of cancer survivorship : research and practice, 2026. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 3 papers.

0numbers the graph read from it
0cells of the map it votes in
3citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

3 citing papers in PubMed.

  1. Article
  2. Article
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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

6 authors.

Evie E M KolsterenDepartment of Medical Psychology, Radboud University Medical Center, Nijmegen, The Netherlands. Evie.Kolsteren@radboudumc.nl.
Esther Deuning-SmitDepartment of Medical Psychology, Radboud University Medical Center, Nijmegen, The Netherlands.
Judith B PrinsDepartment of Medical Psychology, Radboud University Medical Center, Nijmegen, The Netherlands.
Winette T A van der GraafDepartment of Medical Oncology, Netherlands Cancer Institute, Amsterdam, The Netherlands.
Linda KwakkenbosBehavioural Science Institute, Department of Clinical Psychology, Radboud University, Nijmegen, The Netherlands.
José A E CustersDepartment of Medical Psychology, Radboud University Medical Center, Nijmegen, The Netherlands. Jose.Custers@radboudumc.nl.

Funding

Dutch Cancer Society 11889
6 · The paper itself

Abstract

purposeAn emerging group of patients lives longer with advanced cancer while receiving systemic treatment. This study aimed to investigate psychosocial aspects of living longer with advanced cancer, and experiences with psychosocial care, from the perspectives of patients, partners, and health care professionals (HCPs).

methodsFrom May to December 2020, participants were purposively selected. In-depth, semi-structured interviews were conducted by video or phone call, containing open questions regarding psychosocial aspects and psychosocial care in oncology. The data was analysed following thematic analysis, leading to overarching psychosocial themes and indications for optimal organisation of psycho-oncological care.

resultsFifteen patients, seven partners and eleven HCPs were interviewed. The main psychosocial aspects were increasing loss in several life domains, complexity of making life choices, ongoing uncertainty, and fluctuating fear and hope. Partners were affected by their loved ones' condition and reported to put themselves second for longer periods of time, while sometimes missing adequate support. HCPs were challenged by addressing the altering psychosocial needs of patients, and tools to identify those in need for psychosocial support are currently lacking.

conclusionsLiving longer with advanced cancer presents unique challenges for patients and their partners, as well as for HCPs in delivering optimal psychosocial care. IMPLICATIONS FOR CANCER SURVIVORS: Identifying and addressing patients' psychosocial needs from an early stage on, appointing a central hospital-based contact person, limiting the waiting time between scans and consultations, and addressing the partners' wellbeing are suggestions to organise optimal psychosocial support in advanced cancer.

Indexed as

Cancer SurvivorsHealth PersonnelNeoplasmsQuality of LifeSpousesAdultAgedFemaleHumansMaleMiddle AgedQualitative ResearchAdvanced cancerFear of progressionIllness uncertaintyInterviewsPsycho-oncology

Identifiers

PMID39470942
PMCPMC13144172

What OpenQuestion holds

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LicenceCC BY
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Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.