Evidence map›Paper›PMID 39467725›Full record

ArticleDisability and health journal2025

The intersection of systemic lupus erythematosus with social and occupational environments among black adults: A qualitative study.

Deena Aboul-Hassan, Johari Summerville, Bhaavna Yalavarthi, Nikki Farahani, Christine Yu, Lillian Z Xiao, Sia Rajgarhia, Daniel J Clauw, J Michelle Kahlenberg, Melissa DeJonckheere and 1 more

Abstract read
In one paragraph

Article in Disability and health journal, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 2 papers.

0numbers the graph read from it
0cells of the map it votes in
2citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

2 citing papers in PubMed.

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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

11 authors.

Deena Aboul-HassanMedical School, Department of Anesthesiology, University of Michigan, Ann Arbor, United States.
Johari SummervilleMedical School, Department of Anesthesiology, University of Michigan, Ann Arbor, United States.
Bhaavna YalavarthiMedical School, Department of Anesthesiology, University of Michigan, Ann Arbor, United States.
Nikki FarahaniMedical School, Department of Anesthesiology, University of Michigan, Ann Arbor, United States.
Christine YuMedical School, Department of Anesthesiology, University of Michigan, Ann Arbor, United States.
Lillian Z XiaoMedical School, Department of Anesthesiology, University of Michigan, Ann Arbor, United States.
Sia RajgarhiaMedical School, Department of Anesthesiology, University of Michigan, Ann Arbor, United States.
Daniel J ClauwMedical School, Department of Anesthesiology, University of Michigan, Ann Arbor, United States.
J Michelle KahlenbergMedical School, Department of Internal Medicine, University of Michigan, Ann Arbor, United States.
Melissa DeJonckheereMedical School, Department of Family Medicine, University of Michigan, Ann Arbor, United States.
Rachel S BergmansMedical School, Department of Anesthesiology, University of Michigan, Ann Arbor, United States. Electronic address: rbergs@med.umich.edu.

Funding

TRAINING OF ARTHRITIS RESEARCH SCIENTISTST32AR007080 · NIAMS · UNIVERSITY OF MICHIGAN AT ANN ARBOR · PI Jason Knight · 1986 to 2026
$6.3M
Linking Disease Mechanisms and Outcomes in Rheumatic DiseasesK24AR076975 · NIAMS · UNIVERSITY OF MICHIGAN AT ANN ARBOR · PI Joanne Michelle Kahlenberg · 2020 to 2026
$910k
NIAMS NIH HHS K24 AR076975NIAMS NIH HHS T32 AR007080
6 · The paper itself

Abstract

backgroundBlack people have disproportionately high morbidity and mortality due to systemic lupus erythematosus (SLE). Features of social and occupational environments can protect against poor health outcomes.

objectiveWe aimed to characterize how SLE intersects with interpersonal relationships and employment among Black adults to inform tailored care approaches and public policies that could alleviate racial inequities in SLE.

methodsWe used a qualitative, interpretive description approach that involved semi-structured interviews with Black adults who had SLE. The interview guide included questions about SLE diagnosis, impacts on day-to-day life, and symptom management. We analyzed the de-identified transcripts using inductive, thematic analysis with input from representatives of the study population. Our theme development focused on how SLE (i.e., symptoms, severity, management) intersected with interpersonal relationships and employment.

resultsThis study included 30 interviews (97 % female, age range = 18-65 years). Among participants, 30 % were not working due to unemployment or disability and 23 % reported a lack of emotional support. Our analysis resulted in three main themes: 1) The bi-directional relationship between employment and SLE; 2) The positive and negative effects of connecting with other people who have SLE; and 3) The moderating role of relationships with family and friends, and the impact on self-identity.

conclusionsThis study describes features of social and occupational environments that influence SLE management and wellbeing. Our results highlight directions for further study that could identify and address how systemic racism affects race-based inequities in SLE.

Indexed as

Black or African AmericanEmploymentInterpersonal RelationsLupus Erythematosus, SystemicPersons with DisabilitiesSocial EnvironmentSocial SupportAdolescentAdultAgedFemaleHumansInterviews as TopicMaleMichiganMiddle AgedCommunity-engaged researchHealth disparitiesHealth equityRheumatologySemi-structured interviews

Identifiers

PMID39467725
PMCPMC12531891

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Registered trials

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.