Evidence map›Paper›PMID 39451070›Full record

ArticleJournal of burn care & research : official publication of the American Burn Association2025

Engaging Burn Survivors, Their Families, and the Burn Community in Patient-Centered Outcomes Research: A Burn Survivor- and Burn Community Stakeholder-Generated and Prioritized Research Agenda.

Callie M Thompson, Amy Acton, William Alexander, Robel Beyene, Elisha G Brownson, Gretchen J Carrougher, Brennan Christensen, Kimberly Hoarle, Jessica Irven, Laura S Johnson and 11 more

Abstract read
PubMed Full text at PMC Publisher
In one paragraph

Article in Journal of burn care & research : official publication of the American Burn Association, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 1 paper.

0numbers the graph read from it
0cells of the map it votes in
1citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

1 citing paper in PubMed.

  1. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

21 authors.

Callie M ThompsonDepartment of Surgery, University of Utah Regional Burn Center, Salt Lake City, UT 84132, USA.ORCID 0000-0002-1529-5687
Amy ActonPhoenix Society for Burn Survivors, Kentwood, MI 49508, USA.
William AlexanderDepartment of Surgery, University of Utah Regional Burn Center, Salt Lake City, UT 84132, USA.
Robel BeyeneDepartment of Surgery, Division of Trauma, Burn, Critical Care, Vanderbilt University, Nashville, TN 37232, USA.ORCID 0000-0001-7886-6398
Elisha G BrownsonDepartment of Surgery, Alaska Native Medical Center, Anchorage, AK 99508, USA.ORCID 0000-0002-7523-9038
Gretchen J CarrougherDepartment of Surgery, UW Medicine Regional Burn Center, University of Washington, Seattle, WA 98104, USA.ORCID 0000-0002-1438-7483
Brennan ChristensenDepartment of Surgery, University of Utah Regional Burn Center, Salt Lake City, UT 84132, USA.
Kimberly HoarleAmerican Burn Association, Chicago, IL 60606, USA.
Jessica IrvenDepartment of Surgery, University of North Carolina, Chapel Hill, NC 25714, USA.
Laura S JohnsonDepartment of Surgery, Walter L. Ingram Burn Center at Grady Health System, Atlanta, GA 30303, USA.ORCID 0000-0001-6969-2648
Monica P KirkhamDepartment of Surgery, University of Utah Regional Burn Center, Salt Lake City, UT 84132, USA.ORCID 0009-0008-9286-4477
Giavonni M LewisDepartment of Surgery, University of Utah Regional Burn Center, Salt Lake City, UT 84132, USA.ORCID 0000-0001-6324-684X
J Xavier LucioDepartment of Surgery, University of Utah Regional Burn Center, Salt Lake City, UT 84132, USA.
Samoana MatagiDepartment of Surgery, University of Utah Regional Burn Center, Salt Lake City, UT 84132, USA.
Laura MorrisDepartment of Surgery, University of Utah Regional Burn Center, Salt Lake City, UT 84132, USA.
Ann Marie B PrazakDepartment of Surgery, University of Utah Regional Burn Center, Salt Lake City, UT 84132, USA.ORCID 0000-0002-1271-476X
Erin Price-SmithDepartment of Surgery, University of Utah Regional Burn Center, Salt Lake City, UT 84132, USA.ORCID 0009-0009-5836-4724
Bridget StuchlyDepartment of Surgery, University of Utah Regional Burn Center, Salt Lake City, UT 84132, USA.
Crystal WebbDepartment of Surgery, University of Utah Regional Burn Center, Salt Lake City, UT 84132, USA.ORCID 0009-0003-9316-3369
Kristen QuinnDepartment of Surgery, University of Utah Regional Burn Center, Salt Lake City, UT 84132, USA.
Burn Survivor-Centered Outcomes Research (BSCOR) Collaborative

Funding

CTSA UM1 Program at University of UtahUM1TR004409 · NCATS · UTAH STATE HIGHER EDUCATION SYSTEM--UNIVERSITY OF UTAH · PI RACHEL HESS, Jennifer Juhl Majersik · 2023 to 2026
$21.9M
Board of GovernorsEugene Washington PCORI Engagement EACB-22508Methodology CommitteeNCATS NIH HHS UM1 TR004409Patient-Centered Outcomes Research Institute
6 · The paper itself

Abstract

Burn survivors are involved in burn research, but typically in the role of research subject. We believe that the outcomes and impact of burn research can be improved by engaging survivors as collaborators in the planning, implementation, and dissemination of burn research. The goal of this work was to produce the first burn research agenda generated and prioritized by burn survivors and other stakeholders from the burn community. A series of structured focus groups covering 5 topics (Patient and Family Education, Aftercare, Navigating the Healthcare System, Recovery: Physical and Psychosocial, and Barriers to Research) were held with burn survivors and their family members. Specific research questions/topics were identified from the transcripts and prioritized via an anonymous survey of burn survivors, their caregivers, and other stakeholders from the burn community. From these sessions, 37 specific research questions/topics were identified and ranked. In addition, 19 research barriers were identified and ranked. This work presents an innovative approach to burn research through co-production with survivors and other stakeholders. Burn survivors and their caregivers are experts in their lived experiences. By involving them in burn research as collaborators and contributors from the very first steps of research and throughout the continuum of the research planning, conducting projects, and distributing findings, we believe that the research will be both more successful and more impactful. We have taken the first steps in burn research co-production with this novel stakeholder-generated research agenda for the burn community.

Indexed as

BurnsFamilyPatient Outcome AssessmentStakeholder ParticipationSurvivorsAdultCaregiversFemaleFocus GroupsHumansMaleMiddle Agedburn survivorsco-productionresearch agenda

Identifiers

PMID39451070
PMCPMC11879724

What OpenQuestion holds

Textmetadata
LicenceCC BY-NC
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.