Evidence map›Paper›PMID 39448552›Full record

ArticleJournal of the International AIDS Society2024

Power, data and social accountability: defining a community-led monitoring model for strengthened health service delivery.

Ndivhuwo Rambau, Soeurette Policar, Alana R Sharp, Elise Lankiewicz, Allan Nsubuga, Luke Chimhanda, Anele Yawa, Kenneth Mwehonge, Donald Denis Tobaiwa, Gérald Marie Alfred and 14 more

Abstract read
In one paragraph

Article in Journal of the International AIDS Society, 2024. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 6 papers.

0numbers the graph read from it
0cells of the map it votes in
6citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

6 citing papers in PubMed.

  1. Review
  2. Article
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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

24 authors.

Ndivhuwo RambauTreatment Action Campaign (TAC), Johannesburg, South Africa.
Soeurette PolicarL'Organisation de Développement et de Lutte contre la Pauvreté (ODELPA), Port-au-Prince, Haiti.
Alana R Sharp *O'Neill Institute for National and Global Health Law, Georgetown Law Center, Georgetown Medical Center, Washington, DC, USA.ORCID https://orcid.org/0009-0003-6737-6168
Elise Lankiewicz *Andelson Office of Public Policy, amfAR, Washington, DC, USA.ORCID https://orcid.org/0009-0008-9642-4495
Allan NsubugaSexual Minorities Uganda (SMUG), Kampala, Uganda.
Luke ChimhandaZimbabwe PEPFAR-funded CLM, Harare, Zimbabwe.
Anele YawaTreatment Action Campaign (TAC), Johannesburg, South Africa.
Kenneth MwehongeCoalition for Health Promotion and Social Development (HEPS), Kampala, Uganda.
Donald Denis TobaiwaJointed Hands Welfare Organisation (JHWO), Harare, Zimbabwe.
Gérald Marie AlfredAction Citoyenne pour l'Egalité Sociale en Haïti (ACESH), Marchand Dessalines, Haiti.
Matthew M KavanaghAndelson Office of Public Policy, amfAR, Washington, DC, USA.
Asia RussellHealth Global Access Project (Health GAP), Washington, DC, USA.
Solange BaptisteInternational Treatment Preparedness Coalition Global (ITPC), Johannesburg, South Africa.ORCID https://orcid.org/0000-0002-8409-765X
Onesmus Mlewa KalamaEastern Africa National Networks of AIDS and Health Service Organisations (EANNASO), Arusha, Tanzania.
Rodelyn M MarteBangkok, Thailand.
Naïké LedanHealth Global Access Project (Health GAP), Washington, DC, USA.
Brian HonermannAndelson Office of Public Policy, amfAR, Washington, DC, USA.ORCID https://orcid.org/0000-0002-4907-0603
Krista LauerInternational Treatment Preparedness Coalition Global (ITPC), Johannesburg, South Africa.ORCID https://orcid.org/0009-0000-1991-8127
Nadia RafifInternational Treatment Preparedness Coalition Global (ITPC), Johannesburg, South Africa.
Susan PerezThe Global Fund to Fight AIDS, Tuberculosis and Malaria, Geneva, Switzerland.
Gang SunThe Joint United Nations Programme on HIV/AIDS (UNAIDS), Geneva, Switzerland.
Anna GrimsrudThe International AIDS Society, Cape Town, South Africa.ORCID https://orcid.org/0000-0002-1199-8377
Laurel SpragueThe Joint United Nations Programme on HIV/AIDS (UNAIDS), Geneva, Switzerland.
Keith MieniesThe Global Fund to Fight AIDS, Tuberculosis and Malaria, Geneva, Switzerland.

Funding

Global Fund to Fight AIDSTuberculosis and Malaria
6 · The paper itself

Abstract

introductionDespite international commitment to achieving the end of HIV as a public health threat, progress is off-track and existing gaps have been exacerbated by COVID-19's collision with existing pandemics. Born out of models of political accountability and historical healthcare advocacy led by people living with HIV, community-led monitoring (CLM) of health service delivery holds potential as a social accountability model to increase the accessibility and quality of health systems. However, the effectiveness of the CLM model in strengthening accountability and improving service delivery relies on its alignment with evidence-based principles for social accountability mechanisms. We propose a set of unifying principles for CLM to support the impact on the quality and availability of health services. DISCUSSION: Building on the social accountability literature, core CLM implementation principles are defined. CLM programmes include a community-led and independent data collection effort, in which the data tools and methodology are designed by service users and communities most vulnerable to, and most impacted by, service quality. Data are collected routinely, with an emphasis on prioritizing and protecting respondents, and are then be used to conduct routine and community-led advocacy, with the aim of increasing duty-bearer accountability to service users. CLM efforts should represent a broad and collective community response, led independently by impacted communities, incorporating both data collection and advocacy, and should be understood as a long-term approach to building meaningful engagement in systems-wide improvements rather than discrete interventions.

conclusionsThe CLM model is an important social accountability mechanism for improving the responsiveness of critical health services and systems to communities. By establishing a collective understanding of CLM principles, this model paves the way for improved proliferation of CLM with fidelity of implementation approaches to core principles, rigorous examinations of CLM implementation approaches, impact assessments and evaluations of CLM's influence on service quality improvement.

Indexed as

COVID-19Delivery of Health CareSocial ResponsibilityHIV InfectionsHumansSARS-CoV-2accountability mechanismscommunity advocacycommunity‐led monitoringhealth service deliveryhealth systemssocial accountability

Identifiers

PMID39448552
PMCPMC11502303

What OpenQuestion holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.