Evidence map›Paper›PMID 39448390›Full record

ArticleJournal of applied research in intellectual disabilities : JARID2025

Stress, Anxiety and Coping in Adults With Down Syndrome: An Exploratory Co-Research Study.

Ashley Scott, Ryan Gould, Liam Quidore, Keryden Koeut-Futch, Emily Bock, Prisha Sujin Kumar, Staci Christensen, Augusta Edouard, Benjamin Golden, Eden Rapp and 4 more

Abstract read
In one paragraph

Article in Journal of applied research in intellectual disabilities : JARID, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 1 paper.

0numbers the graph read from it
0cells of the map it votes in
1citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

1 citing paper in PubMed.

  1. Evaluation of a Co-Research Program: optimising engagement in research.British journal of learning disabilities · 2025
    Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

14 authors.

Ashley ScottDepartment of Epidemiology, Boston University School of Public Health, Boston, Massachusetts, USA.
Ryan GouldDepartment of Epidemiology, Boston University School of Public Health, Boston, Massachusetts, USA.
Liam QuidoreDepartment of Epidemiology, Boston University School of Public Health, Boston, Massachusetts, USA.
Keryden Koeut-FutchDepartment of Epidemiology, Boston University School of Public Health, Boston, Massachusetts, USA.
Emily BockDepartment of Epidemiology, Boston University School of Public Health, Boston, Massachusetts, USA.
Prisha Sujin KumarDepartment of Epidemiology, Boston University School of Public Health, Boston, Massachusetts, USA.
Staci ChristensenDepartment of Epidemiology, Boston University School of Public Health, Boston, Massachusetts, USA.
Augusta EdouardDepartment of Epidemiology, Boston University School of Public Health, Boston, Massachusetts, USA.
Benjamin GoldenDepartment of Epidemiology, Boston University School of Public Health, Boston, Massachusetts, USA.
Eden RappDepartment of Epidemiology, Boston University School of Public Health, Boston, Massachusetts, USA.
Kaethe SigelkoDepartment of Epidemiology, Boston University School of Public Health, Boston, Massachusetts, USA.
Alexis SokoloffDepartment of Epidemiology, Boston University School of Public Health, Boston, Massachusetts, USA.
Caley VersfeltDepartment of Epidemiology, Boston University School of Public Health, Boston, Massachusetts, USA.
Eric RubensteinDepartment of Epidemiology, Boston University School of Public Health, Boston, Massachusetts, USA.ORCID https://orcid.org/0000-0002-9146-4497

Funding

Down Syndrome Toward Optimal Trajectories and Health using Medicaid Analytic eXtract (DS-TO-THE-MAX)R01AG073179 · NIA · BOSTON UNIVERSITY MEDICAL CAMPUS · PI Eric S Rubenstein · 2021 to 2026
$3.5M
NIA NIH HHS R01 AG073179NIA NIH HHS R01AG073179
6 · The paper itself

Abstract

backgroundAt least half of children and adults with Down syndrome have a major mental health concern during their life but few studies ask people with Down syndrome directly about their experience. We used a co-research model to explore anxiety, stress, and coping in adults with Down syndrome.

methodsOur group of researchers and adults with Down syndrome conducted an online survey on mental health for adults with Down syndrome. We analysed quantitative data and thematically grouped coping mechanisms.

resultsSixty adults with Down syndrome completed the survey, mean age was 30 years, and 55% of respondents had some employment. Approximately 80% of respondents reported experiencing stress and 75% reported experiencing anxiety. Employed respondents were more likely to use social coping mechanisms.

conclusionSoliciting responses from adults with Down syndrome about their mental health can provide valuable insights. Mental health is a concern for people with Down syndrome that should be addressed.

Indexed as

Adaptation, PsychologicalAnxietyDown SyndromeStress, PsychologicalAdolescentAdultFemaleHumansMaleMiddle AgedYoung Adultanxietycoping mechanismsco‐researchDown syndromemental healthstress

Identifiers

PMID39448390
PMCPMC12308725

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Registered trials

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.