Evidence map›Paper›PMID 39448246›Full record

ArticleThe Journal of rheumatology2024

Enhancing Equity in Clinical Research: A Multifaceted Proposal for Spondyloarthritis.

Maureen Dubreuil, Elizabeth D Ferucci, Hani El-Gabalawy, Sarfaraz Hasni, Edith M Williams

Abstract read
In one paragraph

Article in The Journal of rheumatology, 2024. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 3 papers.

0numbers the graph read from it
0cells of the map it votes in
3citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

3 citing papers in PubMed.

  1. Article
  2. Article
  3. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

5 authors.

Maureen DubreuilM. Dubreuil, MD, MSc, Boston University Chobanian & Avedisian School of Medicine, and VA Boston Healthcare System, Boston, Massachusetts, USA; mdubreui@bu.edu.ORCID 0000-0002-6253-1515
Elizabeth D FerucciE.D. Ferucci, MD, MPH, Alaska Native Tribal Health Consortium, Anchorage, Alaska, USA.ORCID 0000-0003-0478-8205
Hani El-GabalawyH. El-Gabalawy, MD, Max Rady College of Medicine, University of Manitoba, Winnipeg, Manitoba, Canada.ORCID 0000-0002-0796-4422
Sarfaraz HasniS. Hasni, MD, MSc, Lupus Clinical Trials Unit, Systemic Autoimmunity Branch, National Institute of Arthritis and Musculoskeletal and Skin Diseases, National Institutes of Health, Bethesda, Maryland, USA.
Edith M WilliamsE.M. Williams, MS, PhD, Office of Health Equity Research, University of Rochester Medical Center, Rochester, New York, USA.

Funding

Resource CoreP30AR072582 · NIAMS · MEDICAL UNIVERSITY OF SOUTH CAROLINA · PI JAMES C OATES · 2017 to 2026
$8.5M
Peer Approaches to Lupus Self-Management (PALS) - Diversity SupplementR01NR017892 · NINR · UNIVERSITY OF ROCHESTER · PI WILLIAMS, EDITH MARIE · 2018 to 2022
$2.5M
NIAMS NIH HHS P30 AR072582NINR NIH HHS R01 NR017892
6 · The paper itself

Abstract

Clinical research advances medical knowledge and improves healthcare outcomes. However, disparities in research participation hinder progress. The Unmet Research Needs in Spondyloarthritis Conference IV highlighted critical insights and strategies to enhance equity in clinical research. Talks focused on engaging underrepresented communities and addressing disparities in rheumatic diseases, particularly spondyloarthritis (SpA), to ensure research results are generalizable and inclusive. Disparities in SpA management, such as greater back pain severity among Black and Hispanic Americans and sex-based differences in pain management, emphasize the need for equitable research. Dr. Elizabeth Ferucci discussed the racial disparities in rheumatologic care, highlighting the importance of early access to rheumatologists and culturally informed primary care to improve outcomes. Dr. Hani El-Gabalawy's talk on engaging Indigenous communities stressed the importance of community consent and reciprocal benefits. Dr. Sarfaraz Hasni's presentation on mitigating disparities in research participation underscored the need for inclusive practices and strategies to promote diverse representation. Finally, Dr. Edith Williams emphasized institutional approaches to fostering equity, including diverse recruitment practices and institutional review board alignment with diversity priorities. Strategies to enhance equity in clinical research include community engagement, addressing logistical barriers to participation, and ensuring diverse research teams. These approaches can dismantle barriers for underrepresented communities, making research more accessible and reflective of the broader population. The SpA research community must commit to creating structures that foster inclusivity, ensuring medical advancements benefit all populations, especially historically underrepresented groups. The principles and strategies proposed serve as a roadmap for achieving equity in SpA research.

Indexed as

Biomedical ResearchHealthcare DisparitiesSpondylarthritisHealth EquityHumansRheumatologyoutcomesspondyloarthritis

Identifiers

PMID39448246
PMCPMC12086716

What OpenQuestion holds

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Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.