SynthesisHealth expectations : an international journal of public participation in health care and health policy2024
Psychosocial Aspects of the Lived Experience of Long COVID: A Systematic Review and Thematic Synthesis of Qualitative Studies.
Synthesis in Health expectations : an international journal of public participation in health care and health policy, 2024. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 10 papers.
What it found
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The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
10 citing papers in PubMed.
- Experiences with Qi and changes in post-acute sequelae of COVID-19 (PASC) symptoms with qigong: a qualitative analysis of participants' experiences in a pilot clinical trial.BMC complementary medicine and therapies · 2025Trial
- Neurological Manifestations of Long COVID: Current Evidence, Emerging Concepts, and Future Perspectives.Journal of clinical medicine · 2026Review
- Bridging the gap in Long COVID care: identifying core competencies for primary care curriculum development and evaluation.BMC primary care · 2026Article
- Long COVID and Its Impact on Healthcare Worker's Job Performance: A Qualitative Study in Spain.Journal of occupational and environmental medicine · 2026Article
- Co-Creating Publicly Available Resources to Increase Awareness of and Support for Long Covid Among Ethnic Minority Communities.Health expectations : an international journal of public participation in health care and health policy · 2026Article
- Supporting the psychosocial well-being of patients with Long COVID: patient-informed strategies from a qualitative study.Frontiers in psychiatry · 2026Article
- Long COVID and psychosocial factors among middle-aged and older adults. Results of the nationally representative German Ageing Survey.Aging clinical and experimental research · 2025Article
- Living With Persistent Respiratory Symptoms of Long COVID: Qualitative Study Among Brazilian Adults 12 Months After Acute Infection.Health expectations : an international journal of public participation in health care and health policy · 2025Article
- Relationship Between Fatigue, Perceived Social Support and Symptomatology of Long-COVID Patients in Spain.Scandinavian journal of caring sciences · 2025Observational
- Living With Long COVID: Everyday Experiences, Health Information Barriers and Patients' Quality of Life.Health expectations : an international journal of public participation in health care and health policy · 2025Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
8 authors.
Funding
Abstract
backgroundDespite increasing recognition of long COVID, the psychosocial impacts of the lived experience on individuals remain underexplored. This systematic review sought to fill this gap by identifying key themes that describe the psychosocial dimensions of long COVID.
objectiveThe aim of this study is to identify key themes illustrating the psychosocial aspects of individuals' lived experience of long COVID. SEARCH STRATEGY: Searches were conducted in multiple databases and grey literature sources for qualitative studies published between November 2019 and June 2024. INCLUSION CRITERIA: Eligible studies involved adult participants self-reporting long COVID. The studies needed to provide qualitative data that could be synthesised thematically. DATA EXTRACTION AND SYNTHESIS: Data extraction and thematic synthesis were conducted by at least two independent reviewers at each stage. Quality appraisal was performed using the Critical Appraisal Skills Programme tool.
resultsThe review included 34 studies. Thematic synthesis yielded five themes: 'Debilitation', 'Uncertainty', 'Sources of Support', 'Meaning Making: Adjusting to a New Normal' and 'Experiences with Healthcare Services'. Individuals with long COVID reported experiencing physical, economic, and social challenges. Uncertainty and scepticism from others caused anxiety. Support from healthcare services, friends and online groups played an important role. Acceptance and gratitude were found to be meaningful in adjusting to the new normal. Experiences with healthcare services varied. DISCUSSION AND
conclusionsThis review provides valuable insights into the psychosocial impact of long COVID, highlighting the profound changes and challenges that individuals face. Healthcare services should adopt a holistic approach to integrate psychosocial support within their management strategies, to improve overall patient outcomes.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.