Evidence map›Paper›PMID 39443920›Full record

SynthesisBMC geriatrics2024

Interventions delivered by primary or community healthcare professionals to support people living at home with dementia with activities of daily living: a systematic review and narrative synthesis.

Helen Chester, Barbara Bradbury, Miriam Santer, Leanne Morrison, Mandy Fader, Jane Ward, Jill Manthorpe, Catherine Murphy

Abstract readSystematic Review
PubMed Full text at PMC Publisher
In one paragraph

Synthesis in BMC geriatrics, 2024. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.

0numbers the graph read from it
0cells of the map it votes in
0citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

0 citing papers in PubMed.

No citing paper in PubMed yet.

4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

8 authors.

Helen ChesterNIHR Policy Research Unit in Health and Social Care Workforce, The Policy Institute King's College London, Virginia Woolf Building 22 Kingsway, London, WC2B 6LE, UK.
Barbara BradburySchool of Health Sciences, University of Southampton, Southampton General Hospital, Tremona Road, Shirley, SO16 6YD, UK.
Miriam SanterPrimary Care Research Centre, School of Primary Care, Population Sciences and Medical Education (PPM), Faculty of Medicine, University of Southampton, Aldermoor Health Centre, Southampton, SO16 5ST, UK.
Leanne MorrisonDepartment of Psychology, Faculty of Environmental and Life Sciences, Primary Care Research Centre, Faculty of Medicine, University of Southampton, Highfield Campus, Southampton, SO17 1BJ, UK.
Mandy FaderSchool of Health Sciences, University of Southampton University, Southampton General Hospital, Tremona Road, Southampton, SO16 6YD, UK.
Jane WardLead for Dementia Friendly Hampshire/Alzheimer's Society Research Network Member, Dementia Friendly Hampshire, Hampshire, UK.
Jill ManthorpeNIHR Policy Research Unit in Health and Social Care Workforce, The Policy Institute King's College London, Virginia Woolf Building 22 Kingsway, London, WC2B 6LE, UK.
Catherine MurphySchool of Health Sciences, University of Southampton, Southampton General Hospital, Tremona Road, Shirley, SO16 6YD, UK. c.murphy@soton.ac.uk.

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

backgroundMost people living with dementia live in their own home supported by family carers. One of the most challenging problems they face is managing toilet-use and continence. Carers have repeatedly asked for better advice from healthcare professionals. The purpose of this systematic review was to inform the development of an intervention to support healthcare professionals to provide existing continence management advice to the carers of people living at home with dementia. It aimed to identify and synthesise lessons from the development and evaluation of interventions, involving primary or community healthcare professionals, to support the provision of management advice aimed at supporting people living at home with dementia and their carers with activities of daily living. Due to a lack of relevant continence or toilet-use interventions, this included, but was not limited to, toileting or continence care.

methodsLiterature (February 2009-November 2022) was searched using five databases: MEDLINE (Ovid); PsycINFO (Ovid); EMBASE (Ovid); Cumulative Index to Nursing and Allied Health Literature (CINAHL) (EBSCO); and Cochrane Central Register of Controlled Trials (CENTRAL). Empirical studies using a variety of methodologies were included and thus the quality of papers appraised using the Mixed-Methods Appraisal Tool. No studies were excluded based on quality. A narrative synthesis was undertaken.

resultsTwelve articles reporting on 10 interventions were included. Most comprised the provision of online resources only, although some combined these with online or face-to-face contact with healthcare professionals. A variety of methodologies was utilised including randomised controlled trials. The quality of included studies was variable. Six main themes were identified: mode of delivery; targeted and tailored resources; content, design and navigation; credibility; user involvement in the development and evaluation of information resources; and role of professionals and organisations.

conclusionsDespite the urgent need to better support people living at home with dementia and their carers, this review highlights the paucity of studies reporting on interventions delivered within primary and community healthcare contexts to provide management advice aimed at supporting this population with activities of daily living. This review has identified important considerations that will potentially aid the development, delivery and evaluation of such interventions. SYSTEMATIC REVIEW REGISTRATION: PROSPERO International Prospective Register of Systematic Reviews CRD42022372456.

Indexed as

Activities of Daily LivingCaregiversDementiaCommunity Health ServicesHumansPrimary Health CareBehavioural interventionsCommunity careContinenceFamily carersHealthcare professionalsNon-pharmacological interventionsPeople living with dementiaPrimary careSystematic review

Identifiers

PMID39443920
PMCPMC11515696

What OpenQuestion holds

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Registered trials

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.